Engage | Educate | Bridge | Lead <br>
Mission: Idaho Parents Unlimited supports, empowers, educates, and advocates to enhance the quality of life for Idahoans with disabilities and their families.

NORD Logo
 
National Organization for Rare Disorders: Rare Disease Information Database
NORD's Rare Disease Database provides brief introductions for patients and their families to more than 1,200 rare diseases. 
 

Next Section: Birth To Three

a doctor examines her patient

 

Family To Family Logo

Family To Family Health Information Center

 
 
 

Family To Family Health Information Centers (F2F-HIC) are established to provide information and assistance to families of children and youth with special health care needs.  Idaho Parents Unlimited is the F2F-HIC for Idaho.

As a parent led organization, we recognize that caring for children with special health care needs is often complex. Like you, we are parents of children and young adults with physical, developmental, and mental health challenges, and we have firsthand experience negotiating the maze of health care services and programs in our state.

We assist families of children with special health care needs to become informed, experienced, and self-sufficient advocates for their children and themselves.

The Health Resource  Services Administration (HRSA's) Maternal and Child Health Bureau (MCHB), together with its partners, has identified six core outcomes to promote the community-based system of services mandated for all children with special health care needs under Title V, Healthy People 2010, and the President’s New Freedom Initiative (NFI) designed to break down barriers to community living for people with disabilities. These outcomes give us a concrete way to measure our progress in making family-centered care a reality and in putting in place the kind of systems all children with special health care needs deserve. Progress toward the overall goal can be measured using these six critical indicators:


Idaho Family Voices 

IPUL is the Family Voices State Affiliate Organization. Family Voices Logo Family Voices aims to achieve family-centered care
for all children and youth with special health care needs and/or disabilities.
We provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.


Telehealth Information: 

What to Expect From a Telehealth Visit (Youtube Video Link)
Qué esperar de una visita de telesalud (Enlace de video de YouTube)

This is a good overview of the process of having a telehealth visit, created by the Hawaii State Department of Health Genomics Section - also in Spanish!


Telehealth Training for Family Advocates: 

This is a link to a telehealth training course for family advocates and others who work with families.  This course will give you a foundation of knowledge about telehealth and where to find resources that families can use to connect to services by telehealth.

https://www.familytelehealthtraining.org/

This project is a collaboration of the Western States Family to Family Health Information Centers and Public Health Maternal and Child Health Programs, Western States Regional Genetics Network, and Pacific Basin Telehealth Resource Center. 


Health Information Across the Lifecourse:

 
 
 
 
 
 
 
 
 
 
 

 

Transition Resource: 

Got Transition? - a website with a great amount of information about transitioning from youth to adult care
-6/1/17

Lifespan Family Caregiving Action Plan

The plan is intended to create awareness among policy makers and others and is intended to stimulate dialogue and encourage movement toward an improved environment for Idaho family caregivers.

Idaho's Lifespan Family Caregiver Action Plan (pdf download) - overview document
Idaho's Lifespan Family Caregiver Action Plan (pdf download) - full document 

Questions? Ask Here

CALL US!

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MAIN:                  
(208) 342-5884 

FAX:                     
(208) 342-1408