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Mission: Idaho Parents Unlimited supports, empowers, educates, and advocates to enhance the quality of life for Idahoans with disabilities and their families.

Transition Resource: 

Got Transition? - a website with a great amount of information about transitioning from youth to adult care

Lifespan Family Caregiving Action Plan

The plan is intended to create awareness among policy makers and others and is intended to stimulate dialogue and encourage movement toward an improved environment for Idaho family caregivers.

Idaho's Lifespan Family Caregiver Action Plan (pdf download) - overview document
Idaho's Lifespan Family Caregiver Action Plan (pdf download) - full document 

Newborn Screening in Idaho

Screening is required by State law:

The Idaho Legislature has instructed the Department of Health and Welfare to require that all babies born in Idaho receive two screening tests for Phenylketonuria (PKU) and other disorders that can result in mental retardation or other serious health problems. This procedure is called the “newborn screen,” or the “newborn blood spot screen.” This test should not be called “The PKU” or the “The PKU Test,” as Idaho now screens for more than 46 conditions. To learn more about the conditions tested for in Idaho, see the Idaho Practitioner's Manual.

What Specific Conditions Does Idaho Screen For?

This is a list of the conditions that Idaho screens Newborns for.

You can see the entire Idaho Metabolic Screening Panel at this link:

Idaho Metabolic Screening Panel 

Baby's First Test

Newborn screening is just one of many things that happen in the first few days after a baby is born. The information found at http://babysfirsttest.org/ can help prepare expecting parents for the newborn screening process and answer common questions, such as: What should I do Before Birth? What are the Screening Procedures? How should I respond to the Results? What are the Screening Outcomes? What happens to the Blood Samples?

Hearing Assesment

The National Center for Hearing Assessment and Management serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems. As a multidisciplinary Center, our goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.

Click Here for more information. 

Western States Regional Genetics Network

The Western States Regional Genetics Network is a federally-funded, multi-state project that seeks to improve individual and family health throughout the life course. The participating states and territories are: Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington.

Their activities aim to increases access to and reduce disparities in newborn screening and clinical genetic and genomic services for individuals with or at risk for heritable disorders. Click here for more information.

Genetics Testing Overview

From the National Oganaization for Rare Diseases - Genetic Testing 101 for Parents Webinar

Do you want to learn more about how genetic testing can be helpful in the diagnosis and management of rare diseases? These topics and more were covered in a NORD RareEDU webinar. In this recording, NORD welcomed Debra Regier, MD, Director of Genetic and Genomic Education at Children's National Hospital in Washington, DC, gives an overview of the different types of genetic tests, indications for their use, and their benefits and limitations. The recording also includes stories from patients and families who have had genetic testing and the impact it has had on their lives.






Prenatal Screening Links and Resources:

Idaho Perinatal ProjectThe primary purpose of the Idaho Perinatal Project is to reduce maternal and infant morbidity and mortality and to improve pregnancy outcomes throughout the state of Idaho.

St. Luke's Maternal Fetal Medicine Genetic Counseling - They help clarify the risks for occurrence or recurrence of a genetic or inherited disorder or condition in specified family members. They help patients and families make sense of complex options for testing and interventions and explain the results of diagnostic tests

Prenatal Care and Testing (Eastern Idaho Regional Medical Center) - Prenatal care is the regular healthcare you will receive during pregnancy from your doctor, midwife, or other healthcare professional. 

Kootenai Health Family Birth Center (Coeur d'Alene, Idaho) - Kootenai is one of only about 100 Baby-Friendly hospitals in the nation. This designation represents the highest standard of care for mothers and babies. A dedication to improving infant health through breastfeeding and other maternal-infant care practices in every department of the hospital helped Kootenai earn this distinction.

St. Luke's Clinic - Obstetrics and Gynecology - Obstetrics and gynecology is medical care for women of all ages that includes (but is not limited to):

  • High and Low Risk Obstetrics
  • TVT Surgery for Urinary Incontinence
  • Endometrial Ablations
  • Women's Surgery
  • Cancer Prevention
  • Pelvic Pain
  • Family Planning, Tubal Ligations
  • Endometriosis
  • 3D/4D Ultrasounds in the Office
  • STD Screening

Next Section: Newborn Screening

Did you know...

  • Every year nearly one million American women deliver babies without receiving adequate medical attention.
  • Babies born to mothers who received no prenatal care are three times more likely to be born at low birth weight, and five times more likely to die, than those whose mothers received prenatal care.
  • If you are pregnant, programs in your State can help you have a healthy baby. These programs offer medical care, support and advice for pregnant women, information about health insurance and other services you and your baby may need.

For more information about prenatal services from the U.S. Department of Health and Human Services click here. 



Idaho Special Supplemental Nutrition Program for Women, Infants and Children (WIC)

WIC helps families by providing:

  • Checks to buy health supplemental foods from local grocery stores ( authorized WIC vendors)
  • Nutrition education
  • Help finding healthcare and other community services
  • Breastfeeding information and support

More information can be found here. 

Office on Women's Health

The Office on Women's Health provides national leadership and coordination to improve the health of women and girls through policy, education and model programs. Click here for information from The Office on Women's Health.

Next Section:  Prenatal Care and Screening

Questions? Ask Here


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(208) 342-5884 

(208) 342-1408