Thursday, November 14, 2019
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Mission:
Idaho Parents Unlimited supports, empowers, educates and advocates to enhance the quality of life for Idahoans with disabilities and their families
NORD Logo
 
 
 
 
National Organization for Rare Disorders: Rare Disease Information Database
NORD's Rare Disease Database provides brief introductions for patients and their families to more than 1,200 rare diseases. 
 

Next Section: Birth To Three

Family To Family Logo

Family To Family Health Information Center

 
 
 

Family To Family Health Information Centers (F2F-HIC) are established to provide information and assistance to families of children and youth with special health care needs.  Idaho Parents Unlimited is the F2F-HIC for Idaho.

As a parent led organization, we recognize that caring for children with special health care needs is often complex. Like you, we are parents of children and young adults with physical, developmental, and mental health challenges, and we have firsthand experience negotiating the maze of health care services and programs in our state.

We assist families of children with special health care needs to become informed, experienced, and self-sufficient advocates for their children and themselves.

The Health Resource  Services Administration (HRSA's) Maternal and Child Health Bureau (MCHB), together with its partners, has identified six core outcomes to promote the community-based system of services mandated for all children with special health care needs under Title V, Healthy People 2010, and the President’s New Freedom Initiative (NFI) designed to break down barriers to community living for people with disabilities. These outcomes give us a concrete way to measure our progress in making family-centered care a reality and in putting in place the kind of systems all children with special health care needs deserve. Progress toward the overall goal can be measured using these six critical indicators:


Idaho Family Voices 

IPUL is the Family Voices State Affiliate Organization. Family Voices Logo Family Voices aims to achieve family-centered care
for all children and youth with special health care needs and/or disabilities.
We provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.


Health Information Across the Lifecourse:

 
 
 
 
 
 
 
 
 
 
 

Children's Developmental Disabilities Services Council Rulemaking Update Letter

You can download the PDF of this letter here.
You can download PDF of the first page of the schedule here
You can download PDF of the second page of the schedule here

Here's the text of the letter: 
 
August 13, 2018
 
Dear Participants and Guardians

The Department has made the decision to withdraw the proposed changes to the Children's Enhancement rules originally scheduled for the 2019 legislature. After hearing concerns from parents, providers, and other advocates, the Department believes more collaboration is needed to move habilitative intervention into the state plan, maintain the family directed option, and ensure agencies are able to adequately provide the state plan habilitative intervention services.

In order to facilitate ongoing collaboration, the Department is scheduling formal and informal negotiated rule making sessions beginning in September 2018 and continuing through May 2019. The first meeting will be held on Tuesday, September 11, 2018, from 1:00-4:00 PM, at 1720 N. Westgate Drive, Conference room 131, Boise, ID. Other meetings will be scheduled monthly, or more often as needed. To ensure families from around the state have the opportunity to provide input, video and in person meetings will be scheduled in other regions of the state. 
 
Meetings will be announced on this website:    
https://healthandwelfare.idaho.gov/medical/developmentaldisabilities/childrensddservices/childrensddservicesenhancementproject/tabid/3566/default.aspx 
Once on the website, select the rule making schedule tab in the right-hand column.
 
A draft of the proposed rules is attached to this letter. These draft rules are a beginning point for our discussions. We will go through the draft rules section by section to identify concerns, barriers, and allow for the sharing of constructive ideas and alternatives to develop a set of rules that can be supported by both the Department and stakeholders. 

Since the current children's waiver expires on June 30, 2019, and habilitative intervention services can no longer operate under the current waiver authority, it is imperative new rules are written. These will be temporary-proposed rules and will take effect on July 1, 2019. In order for the rules to become permanent, they must be approved by the 2020 legislature.

By taking this action, it allows the Department and stakeholders the additional time needed to collaboratively address concerns with moving habilitative intervention services into the state plan. 

We look forward to working together to create positive and effective services 

Sincerely, 
Arthur L. Evans, LMSW
Bureau Chief    
Bureau of Developmental Disability Services
 
So, what does this letter really mean?
  • The Enhancement Project work will continue through Legislative Session of 2020.
  • The Department extended this project timeline to have more time for collaboration with participants and families.
  • The Department has scheduled monthly meetings open to participants and families to hear your comments on the rule proposals. Meetings are scheduled in every Region throughout the state. This schedule will be distributed at the September meeting (details in the attached letter) and posted to the website.
  • Intervention services will be offered through the State Plan/Medicaid Card as of July 1st 2019
  • Support services (including FDS CSWs and Equipment) will continue to be offered through the Waiver/Budget as of July 1st 2019.
  • Support services will continue to be paid for using a determined budget. The Department recommends the budget determination for supports to stay the same as it is now through June of 2020.
  • FDS participants CAN choose both intervention and support services
For more information about the Children's DD Services Enhancement Project you can visit their website.

MTM Non-Emergency Medical Transport FAQ's

On March 6th, Medical Transportation Management (MTM) will take over Non-Emergency Medical Transport in the State of Idaho, replacing Veyo in that capacity.  Do you have questions about this?  Here's MTM's Frequently Asked Questions for your information.


Youth Empowerment Services (YES)

Introducing access to a new system of care for Idaho Children with SED
 
Starting in 2018, Idaho children with serious emotional disturbance (SED) can take a new path to Medicaid, thanks to the launch of the Youth Empowerment Services program, or YES.
Spearheaded by the Idaho Department of Health and Welfare (DHW), YES introduces a family-centered, strengths-based system of care focused on improving outcomes for children and youth with SED.

Click here to see the PDF showing how to get access. 
 
 
 

Bright Futures Website 

Bright Futures is a national health promotion initiative dedicated to the principle that every child deserves to be healthy and that optimal health involves a trusting relationship between the health professional, the child, the family, and the community as partners in health practice.

Launched by HRSA's Maternal and Child Health Bureau in 1990, the Bright Futures initiative is focused at the American Academy of Pediatrics and a collaborative of other federally- and State-funded Bright Futures projects (click below for select projects).


Health and Welfare of Idaho Website

The Idaho Children's Special Health Program (CSHP) provides consultation, information, technical assistance and referral services for the families of children who have chronic illnesses and disabilities. CSHP works with families, providers and communities to help establish and maintain a system of information, provide referral and follow-up services.

CSHP also promotes parent-to-parent support networks to ensure that all families have access to support services and health benefits counseling, and attempts to build systems of care in collaboration with other child/family efforts to link community-based health, social services and education agencies.


Children's Developmental Disability (DD) Services Website

Idaho Medicaid received guidance from the Centers for Medicare and Medicaid Services (CMS) about changes in Federal law that will require Idaho Medicaid to make changes in how Children’s Developmental Disabilities (DD) Services are offered. Currently, Medicaid provides services for children with developmental disabilities through waivers granted by the federal government. With the new changes, states are being required to offer intervention services for Children’s Developmental Disabilities through Medicaid State Plans.

To assist in aligning with Federal law, Medicaid in collaboration with Family and Community Services (FACS) has established the Children’s DD Services Enhancement Project with a primary goal of moving intervention services into the Idaho Medicaid State Plan by July 1, 2018. To ensure success Medicaid and FACS recognize the importance of engaging stakeholders from the beginning to the end of the project.  

To apply for assistance, there is now a form that includes full instructions available on the website.  You can also access it by clicking this link. 

Family To Family Project Purpose

Families with children and youth who have special health care needs need help with the numerous problems they encounter.  The Family To Family project assists families with those problems, which include:

  1. Finding payment for medical care
  2. Obtaining help navigating public health care financial problems
  3. Seeking dialogue with other parents in similar situations
  4. Advocating for their child
  5. Looking for information to find community resources
  6. Linking to an established clearing house of information about health care issues
  7. Obtaining one to one assistance finding information and getting referrals for specific health problems
  8. Locating and attending workshops and obtaining materials about related health care issues, including information tailored to assist youth and parents in transition to adulthood
  9. Collaborating with Idaho's Family Voices and the national network of Family Voices, which are the technical assistance arms of  F 2 F
  10. Gaining empowerment to make changes in established federal, state, and local governing systems

The Family To Family Health Information Center at Idaho Parents Unlimited provides these services statewide.


Maternal and Child Health Library

The Maternal and Child Health Library, located at Georgetown University, includes knowledge about caring for children and youth with special health care needs. It offers a selection of current, high-quality resources that analyze data, describe effective programs, and report on policy and research aimed at developing systems of care that are family-centered, community-based, coordinated, and culturally competent. A separate section lists resources for families. The final part of the knowledge path presents resources that address specific aspects of care and development, such as advocacy, early intervention and education, financing services, rehabilitation, screening, and transition. This knowledge path for health professionals, program administrators, policymakers, educators, researchers, and families will be updated periodically. For more information go to http://www.mchlibrary.info/KnowledgePaths/kp_cshcn.html

A leader in health policy and communications, the Kaiser Family Foundation is a non-profit, private operating foundation focusing on the major health care issues facing the U.S., as well as the U.S. role in global health policy. Unlike grant-making foundations, Kaiser develops and runs its own research and communications programs, sometimes in partnership with other non-profit research organizations or major media companies.http://www.kff.org/


 

Promoting Children's Long-Term Health and Functioning: Applying a Life Course Approach to Pediatric Care for Children with Special Health Care Needs

Life Course Theory (LCT) takes into account variations in timing, timeline, environment and equity in experiences and exposures across individuals and populations—and examines the impact on health throughout life. Life course science has been embraced by health researchers, public health agencies, health policy experts, health care providers and leading academics in the U.S. and abroad. However, the translation of LCT to actual pediatric practice and systems has been slow to take hold in any organized way. Promoting life course implementation in pediatric care for children with special health care needs (CSHCN) requires a life course implementation framework specifically designed by and for this constituency, with the goal of helping pediatric practices define and become life course practice settings. As a first step in moving toward such a framework, this report outlines key themes identified through a literature review and interviews and consolidates them into six action areas for pediatric practices.

Download the report here.

 


Do you or someone you know have a child who has been diagnosed with Microtia and Aural Atresia?

We would like to make you aware of 2 Ears 2 Learn, a non-profit organization that collects and refurbishes used sound processors and provides them to qualified children with Microtia and Aural Atresia at no charge.

You can learn more about this at their website:

http://2ears2learn.org/

On March 6th, Medical Transportation Management (MTM) will take over Non-Emergency Medical Transport in the State of Idaho.  Here's MTM's FAQ for your information.
 


Idaho Medicaid Non-Emergency Medical Transportation (NEMT) Brokerage

Frequently Asked Questions

 
Question
 
Answer
 
What is a transportation brokerage?
 
An NEMT broker is a company that contracts with Medicaid to coordinate NEMT benefits for Medicaid participants across the state.
Who is Medicaid’s transportation brokerage?
 
Medicaid has contracted with Medical Transportation Management, Inc. (MTM), as the NEMT transportation brokerage.
 
What will MTM do?
 
MTM will:
  • Operate a call center where Medicaid participants, family, care givers, case managers, etc. will call in to schedule a ride when the participant has no other means of accessing their Medicaid-covered medical care or needs assistance with reimbursement for transportation.
  • Authorize transportation services based on information provided from the participant, the broker will prior authorize appropriate NEMT services for the participant to access medical care when the participant is unable to meet their own transportation needs or obtain help from friends, family, or community resources to meet those needs.
  • Assign the participant to an appropriate provider for their transportation needs. MTM will contract with transportation providers to create a statewide transportation network.MTM will assign one of its contracted providers to meet participant’s needs once a ride is authorized.
  • MTM will ensure high-quality transportation services are accessible to participants. MTM will monitor the transportation provider network to ensure that participants get to their medical appointments timely, providers’ vehicles are safe, and the drivers are credentialed and courteous.
 
 
When will MTM take over the NEMT services?
 
MTM will take over responsibility as the NEMT broker on March 6, 2018.  
 
Who is eligible for NEMT services with MTM?
If you have full Medicaid benefits, you are eligible for NEMT services with MTM.  NEMT services are provided to Medicaid eligible participants, who do not have access to another form of transportation, to get to their medical appointments.
When can I contact MTM to schedule transportation?
MTM’s call center will start taking calls to schedule transportation on February 20, 2018. MTM can only schedule trips that will take place on or after March 6th, 2018.
Will I call the same phone number to schedule transportation with MTM?
Yes.  The phone number you currently call to schedule transportation, 1-877-503-1261, will be transferred over to MTM.  Between February 20th and March 5th, when you call the phone number, you will have the option to either speak to Veyo, the current NEMT broker, or be transferred to MTM to schedule transportation for after March 6th.
Will MTM provide services directly?
 
No.  MTM will only coordinate services and will not operate any vehicles under this contract.
 
Will MTM contract with all current Medicaid transportation providers?
MTM will contract with many of the same providers that serve Medicaid participants now.  However, MTM is not required to sign contracts with current providers and may choose to contract only with the providers that can meet the needs of Medicaid participants most efficiently in a given area.
Will I be able to ride with the same provider that I have used in the past?
Many, but not all participants will be able to continue to use the same provider.  If the NEMT provider you currently ride with chooses to not contract with MTM, they would not be able to provide transportation services for Medicaid participants.
Will I be able to continue to receive reimbursement as an individual transportation provider for my own transportation, or for a friend or family member’s transportation?
Yes.  MTM will continue to contract with individual providers.  MTM will reimburse individual providers at $0.30 per mile.
Who should I contact at Medicaid if I have a question or concern about NEMT services?
Please email: This email address is being protected from spambots. You need JavaScript enabled to view it. or call: 1-877-296-0509 or visit the Medicaid Transportation web page to fill out the online form at : https://healthandwelfare.idaho.gov/Medical/Medicaid/MedicalCare/MedicalTransportation
What are my rights?
Members shall have the right to file a grievance/appeal about any matter related to their services. All members will be provided a written notice when transportation is denied. The grievance/appeal procedure will be on the written notice. If you have questions about the grievance/appeal process, please call: 1-866-436-0457
Is my personal contact and medical information secure?
Yes. All Personal Health Information (PHI) provided directly to MTM is secure and confidential to the extent required by HIPAA.
How far in advance do I need to call to schedule a ride?
You must call at least two business days in advance for routine medical appointments. If your trip is urgent and can be verified urgent by your medical provider, MTM will set up your ride with less than two business days’ notice.
What do I do if I need help in another language?
If you or someone you’re helping needs assistance in another language, please call:     1-888-561-8747.  There is no cost to you.
Who should I contact at MTM if I have a complaint about my NEMT benefits?
If you or someone you’re helping has a complaint, please call MTM at:1-866-436-0457 or complete the MTM “Contact Us” online form http://www.mtm-inc.net/contact/
How can I hear updates about the transition to MTM?
Medicaid is currently holding calls on Monday’s at 2:00pm MST for stakeholders who have questions or comments about MTM.  If you would like to join, email the Medicaid staff at This email address is being protected from spambots. You need JavaScript enabled to view it.
If my agency or facility is interested in providing NEMT services for our members, who do I contact? 
For anyone interested in providing NEMT services, please visit MTM’s website at http://www.mtm-inc.net/healthcare/nemt/join-our-network/
 

Transition Resource: 

Got Transition? - a website with a great amount of information about transitioning from youth to adult care
-6/1/17