#QuestionsWithYouIn2022 Archive
IPUL is running a new weekly event for 2022, where we pose questions for you to answer over on our Facebook page every Monday, then on Friday post an answer to that question! We are going to be updating them here as well, but for the full conversation be sure to check out our facebook page!
Week 0 - What this is
IPUL is doing something new in 2022!
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Questions With You
Weekly questions posted on Mondays with an answer/clarification provided on Fridays. Have some fun learning and sharing in 2022!
#QuestionsWithYouIn2022
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Week 48 - What pressing issues do you want to see the most advocacy around in the new year?
A48
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What pressing issues do you want to see the most advocacy around in the new year?
"Direct Care Workforce - Reimbursement Rates and Training for the Workforce"
"Children's Mental Health- failure to implement HB233"
"Adult DD Waiver Services"
"Bridging the gap of care for children with developmental delays, from 3 to school age. There are a lot of free supports for children under 3 and after entering school, but kids 3-5/6 need Medicaid to afford most supports."
"To me I think it would be helpful to make it mandatory parents are required to attend a What is an IEP, How to Advocate, and what does Procedural Safeguards actually mean, even what does accommodations mean before the child is first put on an IEP and then required class every 3 years."
Here are some good ways to advocate for the issues important to you:
Prepare for the upcoming legislative sessions.
Get involved.
Listen to the legislative sessions.
Here is the link for where you can stay updated on the upcoming legistlative sessions, starting January 9, 2023. https://legislature.idaho.gov/sessioninfo/
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Week 47 - Do you know the difference between Person first language and Identity first language, why is it an important question?
A47
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Do you know the difference between Person first language and Identity first language, why is it an important question?
An example of Identity First Language (IFL) is "Autistic Person". An example of Person First Language (PFL) is "Person with Autism". The distinction may seem slight, but research indicates that a vast majority, over 80%, of the autistic population prefers Identity First Language.
Week 46 - Give thanks for the little things! What is something you are thankful for?
A46
Give thanks for the little things! What is something you are thankful for?
- I am thankful for Cherry Coke Zero. I couldn't make it through life without it! - I am thankful for The ability to Google any question. How did we live without the internet? - I am thankful for Unconditional love and Uncontrollable laughter that exudes from my house this time of year.
-Melissa
- I am thankful for fringe benefits! I love working for an organization that will allow me to work from home if I have a sick child...Thanks IPUL! - I am thankful for the library. My oldest son frequently flips through the first few chapters of several books before finally settling on one to read all the way through and the Main Library has such a good selection. - I am thankful for liquid medicine. Sometimes medicine is just too hard to swallow and I am so happy that in some cases there are liquid alternatives that I can give my kids. It's just one less thing to worry about.
-Allison
- I am thankful for coffee, without it I wouldn't be able to create words. - I am thankful for being able to be a part of IPUL for almost a year. - I am also very thankful for Ms. Rachel, she helps distract the kids when I need to focus on my work haha.
-Amanda
Happy Thanksgiving!
Week 45 - How do you prepare for the holidays?
A45
Idaho Parents Unlimited
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How do you prepare for the holidays?
Since I was young my grandmother, aunt, mom, and sister have been making and decorating Holiday cookies. My sister and I have carried on this tradition with our children and I look forward to it every year. It is fun for all of and as messy as it can get sometimes, it is an inclusive activity and the end result is never the same.
-Sarah
I prepare for the Holidays by creating different social stories that include the family that will be coming over as well as the different activities we will be participating in. I check to make sure that we have an extra pair of noise reducing headphones in the car for Thanksgiving dinner and Christmas parties. We always plan to arrive a little early to events so we can get acclimated when its quieter, and we always plan to leave early.
-Allison
To "prep" my family for the holidays, first I plan out a schedule. Our family of 6 can get quite hectic this time of year, so each member has a color on the calendar. It helps see who needs to be where and when, but also it allows us to build in some "Family Nights" where we make gingerbread houses, watch movies and look at Christmas lights. I also make sure to include sensory activities into family nights, so my kiddos are all accommodated.
-Melissa
Some things never change even though my kids are grown. We always set up our Christmas tree the day after Thanksgiving. The decorating process takes up the entire weekend. I was raised by an interior decorator so some of my traditions include holdovers from my childhood such as making sure my tree, ornaments, and even wrapping paper all match. On Christmas Day, we open presents, watch our favorite movies - Christmas Vacation and Christmas Story - and enjoy a prime rib dinner. This year will be the first year that my son, now newly married and living out of state, won't be home for the holidays. Our girls will both be with us, and we're getting a new puppy. I look forward to the beauty and the chaos!
-Angela
Our family prepares for the holidays by making sure our home is ready and welcoming. We host in our home due to my moms age. We prep the food for the day of Thanksgiving and spend the day celebrating with our family. Our holidays have looked a little different the last couple of years and we are really family focused in our celebrations. We typically like to welcome the winter holiday a little early in our home, around Halloween, and like to put up our tree. The last couple months of the year are my absolute favorite, I love the quality time that I get with my family!
-Amanda
Happy Holidays!
Week 44 - Every Individualized Educational Plan (IEP) includes the question “Has assistive technology been considered?” Do you know what this means for your child?
A44
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Every Individualized Educational Plan (IEP) includes the question “Has assistive technology been considered?” Do you know what this means for your child?
Idaho Assistive Technology (IATP) project is celebrating 30 years! IATP may assist with AT assessments for your child. There is an AT Lending Library for you to try out various types of equipment. Visit their website at: https://idahoat.org/
Week 43 - Who is considered a caregiver?
A43
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Who is considered a caregiver?
Chances are… It’s you! Many parents of children with disabilities don’t consider themselves a caregiver. When we think of caregiving, we often think of caring for an aging loved one. Parents of children with disabilities are in fact also caregivers. Learn more about the Idaho Caregivers Alliance and the Family Caregiver Conference (Held in March 2023) at idahocaregiveralliance.com
Week 42 - Let's talk 1:1 support in schools. When is it appropriate?
A42
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Let's talk 1:1 support in schools. When is it appropriate?
1:1 Supports may be appropriate for when the student is experiencing behavioral, instructional, or health/medical challenges.
Consider whether the student requires 1:1 support for the duration of the school day or if providing 1:1 support in targeted environments, for specific content areas, or around challenging times of day would meet the student’s need.
For the entire quick guide go to: https://tinyurl.com/2djah6f4
Week 41 - Has your child received a diagnosis of Autism? Were they referred to a genetics counselor?
A41
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Has your child received a diagnosis of Autism? Were they referred to a genetics counselor?
The American Academy of Pediatrics recommends anyone with a developmental delay, intellectual disability or autism diagnosis get specific genetic testing for Fragile X syndrome, which can’t be picked up by microarray or exome sequencing.
According to Dean Hartley, Autism Speaks’ Senior Director of Discovery and Translational Science | December 16, 2019 "We recommend anyone with an autism diagnosis get genetic testing. Unfortunately, less than half of people with autism do. Current genetic testing will not give answers to everyone, but without testing we will not be able to give information to some individuals or families that could explain the possible cause of autism and possible future medical conditions."
More information below:
Week 40- How Do I Access Genetic Testing?
A40
How do I access genetic testing?
Who should be referred:
- Physical differences from birth or growth problems
- Intellectual disability or developmental delay
- Autism Spectrum Disorder
- A known genetic diagnosis without follow-up for several years
How to get referred:
- Referral from child's doctor (pediatrician) or family doctor
- Contact a genetics clinic directly to request a referral
Where to be referred to:
- Genetics clinics
- Developmental or behavioral clinics
- Multidisciplinary specialty clinics (where a child sees more than one type of specialist in the same visit)
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Week 39- What is Genetic Testing?
A39
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What is genetic testing?
Genetic testing looks for changes in someone's genes. It can help diagnose a number of different things such as developmental disabilities and also inform you if you are at higher risk for certain illness' such as cancer. Not all genetic conditions are hereditary, some appear in an individual for the first time. When this happens it is called "de novo" mutations.
For more information you can go to: https://www.chop.edu/news/health-tip/genetic-testing-101-what-parents-need-know
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Week 38- What does Idaho’s Family Direct Services (FDS) say about service animals?
A38
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What does Idaho’s Family Direct Services (FDS) say about service animals?
When FDS considers an application for a service dog the committee looks at the child’s qualifying diagnosis, the tasks/services that are requested for the dog to perform, what has already been tried to help the child with these tasks, and what has worked/not worked out of the interventions that have been tried. FDS can approve service dogs by definition in the Americans with Disabilities Act. FDS does not fund Emotional Support animals, therapy dogs, or animals other than dogs. The service dog has to be trained to do tasks for the child with a developmental disability. The qualifying developmental disabilities in Idaho are Autism, Cerebral Palsy, Epilepsy, Intellectual Disability, or something that a doctor has closely related to one of those four diagnoses.
Other FDS requirements: A dog that has been a pet cannot be “converted” into a Service dog. The dog has to be at least 1 year old and completed basic obedience training. The dog also has to have completed and passed a public access test or met the minimum standards for service dogs established by Assistance Dogs International. https://assistancedogsinternational.org/
*Page 2*
Service Dogs through Medicaid’s Children’s Developmental Disability Services Program
Service dogs and service dog related expenses can be obtained through the Medicaid Children’s
Developmental Disability Services Family Direction Program in certain circumstances. They are
funded as adaptive equipment to assist children with activities of daily living.
The Department will review requests for service dog related funding and make recommendations
based on current evidence-based practice and best practice guidelines. Evidence-based practice
and best practice guidelines include, but are not limited to, industry guidelines and standards on
service animal selection, acquisition and training. When necessary, the Department may ask for
additional information.
Attached is an application for funding of a service dog and/or service dog related expenses through
the Family Directed Service Option. Typically, a written response will be made to the parent(s) legal
guardian within 15 business days from when the application is complete and all the information that
the committee has requested has been submitted.
Steps in Applying for a Service Dog through Medicaid’s
Children’s Developmental Disability Services Program
1. If not already participating in the Medicaid’s Children’s Community Developmental Disability
Program, apply. Contact information can be obtained at
www.ChildrensDDservices.dhw.idaho.gov or by calling (208) 334-5512.
2. The Children’s Community Developmental Disability Program has two program options. The
“Traditional Model” and the “Family Directed Services” Model. Service dogs are available
through the Family Directed Services Model.
3. Indicate to Family and Community Services (FACS) staff that you wish to select the Family-
Directed Services Model.
4. Once you have gone through the Family-Directed Services process, and are ready to write an
annual plan (Support and Spending Plan), indicate that you wish to purchase a service dog.
5. You will be given an Application for a Service Dog. You will need to gather information
regarding the dog’s intended use, breeding and training. Once the application is complete
submit it to your regional FACS staff who will forward it to the Service Dog Funding Advisory
Committee. Typically, you will be notified of the decision within 15 business days.
6. You will be issued a Notice of Decision regarding plan approval.
If you have any questions regarding this process, please contact
Rachel Johnson at (208) 334-0603 or This email address is being protected from spambots. You need JavaScript enabled to view it.
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Week 37- Are emotional support animals and service animals the same?
A37
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Are emotional support animals and Service animals the same?
ESA: Animals that provide comfort just by being with a person. Because they have not been trained to perform a specific job or task, they do not qualify as service animals under the ADA.
Service Animal:defined as a dog (or mini horse) that has been individually trained to do work or perform tasks for an individual with a disability.
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Week 36- Let's talk about service animals! What qualifies as a service animal in Idaho?
A36
Idaho Parents Unlimited
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Let's talk about service animals! What qualifies as a service animal in Idaho?
Service animals consist of...
Dogs AND sometimes Miniature Horses!
Here is a link to the Service Animal Fact Sheet from the Americans with Disabilities Act (ADA) with more information.
https://www.ada.gov/service_animals_2010.htm
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Week 35-Does my child’s IEP follow them to college?
A35
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Does my child’s IEP follow them to college?
In short, the answer is no. Individualized Education Plans do not follow you to college. Students may receive accommodations in college under Section 504 of the Rehabilitation Act. However, a 504 plan, such as they may have in school, doesn't actually follow them to college.
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Week 34-Let's revisit the “three prongs” of eligibility for special education!
A34
Idaho Parents Unlimited
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Let's revisit the “three prongs” of eligibility for special education!
- Does your child have a disability that falls within the 14 categories?
- Does your child’s condition adversely affect educational performance?
- Does your child need specially designed instruction?
14 eligibility categories in the SPED manual and the quick guide: CHAPTER 4: EVALUATION AND ELIGIBILITY
https://www.sde.idaho.gov/sped/files/shared/Idaho-Special-Education-Manual-2018-Final.pdf
https://www.sde.idaho.gov/sped/sped-manual/files/chapters/chapter-4-evaluation-and-eligibility/Quick-Guide-Three-Prong-Test-of-Eligibility.pdf
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Week 33- What are the Special Education programs offered in your district? What are they called? (i.e. Excel, ERR)
A33
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What are the Special Education programs offered in your district? What are they called? (i.e. Excel, ERR)
Special Education Program names differ from district to district. Some from around the state include: Excel, Extended Resource Room (ERR), Diverse Learning (DL), Resource Room, RISE (Reaching Independence through Support and Education), SLC (Structured Learning Center), Integrated Classrooms, ILC (Independent Learning Classrooms), PACE (Partners for a Collaborative Education), and BASICS (Behavior, Academics and Social Intervention care Systems).
It’s important to keep in mind that regardless of placement, IEP’s provide individualized instruction for your student.
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Week 32- It’s a new school year, I think there are new people at my child’s school. How do I know who to talk to about my child’s special education services? Where do I start?
A32
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It’s a new school year, I think there are new people at my child’s school. How do I know who to talk to about my child’s special education services? Where do I start?
First and foremost, speak with your child’s special education teacher. Special education teachers are on ground with your students and can usually assist with most things. If there are bigger problems or questions that your teacher cannot answer, the next step would be to reach out to the district’s Special Education Coordinator/Director. The State Department of Education also offers several dispute resolution options as well. As always you can contact IPUL, Idaho’s Parent Training and Information Center, for any questions or concerns.
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Week 31- What are soft skills, and what does that mean for young people with disabilities who are looking for a job?
A31
What are soft skills, and what does that mean for young people with disabilities who are looking for a job?
Soft skills: personal characteristics that permit someone to interact effectively and amicably with other people.
Six Key Skill Areas:
1. Communication Skills - Learning when and how to communicate in a business setting is an important soft skill. Most youth only experience communication as it is at home, school, or with their friends and peers. However, communicating in the workplace is very different. Youth must learn how to communicate with supervisors, co-workers, and customers and /or clients. In addition, listening is a big component of communicating effectively.
2. Enthusiasm and Attitude - It is important for all to be enthusiastic and have a positive attitude in the workplace. Within the curriculum, youth learn how to turn negative thinking into positive thinking and displaying and discussing enthusiasm during an interview and on the job.
3. Teamwork - Successful businesses rely on team players and teaching youth the elements of teamwork is another essential soft skill. In the workplace, knowing how and when to lead and follow takes practice, as does knowing how to avoid unnecessary conflict. Further, knowing how to resolve conflicts, negotiate and compromise are all important skills for everyone to develop.
Six Key Skill Areas Continued:
4. Networking - Networking is essential to career growth and advancement. Networking is the process or practice of building and maintaining informal relationships or exchanges of information that are supportive of professional or career goals. Teaching youth the skills of making those connections about employment goals, interests, and desires through contacts from friends, family members, and acquaintances is an important soft skill.
5. Problem Solving and Critical Thinking - Problem solving and critical thinking refers to the ability to use knowledge, facts, and data to effectively solve workplace problems, as well as knowing how to use these skills in a variety of settings, including working with teams and working with disgruntled clients or customers. The curriculum teaches youth how to solve problems in a variety of ways and settings.
6. Professionalism - Professionalism contains many elements, including: resume creation, how to dress properly for work, attendance and timeliness, and appropriate use cell phones and computers. Further, being professional is also knowing how to communicate with supervisors, peers, customers, and / or clients. This section in the curriculum focuses on the five previous skills, but in a broader framework, teaching youth how it is important to know and use every skill for workplace success.
Credit: https://youth.gov/feature-article/soft-skills-pay-bills
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Week 30- Who is eligible for Head Start and how can you access the program?
A30
Who is eligible for Head Start and how can you access the program?
Parents and children from birth to age five who are from families with incomes below the poverty guidelines may be eligible for Head Start and Early Head Start services. In addition, your family may be eligible if your child is:
- Eligible for or receiving public assistance, such as Temporary Assistance for Needy Families (TANF), Supplemental Security Income (SSI), Supplemental Nutrition Assistance Program (SNAP), Nutrition Assistance Program (NAP) and the Food Distribution Program on Indian Reservations (FDPIR)
- Experiencing homelessness (see the definition https://nche.ed.gov/mckinney-vento-definition)
- In foster care
- Disabled or has a serious health/mental health condition
Children with disabilities may be eligible without meeting income requirements.
Please contact your local Head Start program to learn more about eligibility.
Friends of Children & Families, Inc.
Serving Ages 4-5 in Boise, Garden City, Kuna, Meridian, and Mountain Home
Serving Ages 0-3 in Garden City and Glens Ferry
6225 North Meeker Place, Boise, ID 83713
www.focaf.org
(208) 344-9187
Community Council of Idaho Migrant and Seasonal Head Start
Serving Ages 0-5 in Aberdeen, Burley, Caldwell, Gooding, Idaho Falls, Mountain Home, Nampa, Twin Falls, and Weiser
317 Happy Day Blvd, Caldwell, ID 83607
www.communitycouncilofidaho.org/head_start
(208) 454-1652
Western Idaho Community Action Partnership Head Start
Serving Ages 0-3 in Caldwell, Donnelly, Emmett, Marsing, Payette, Weiser, and Wilder Serving Ages 3-5 in Caldwell, Donnelly, Emmett, Nampa, Payette, Weiser, and Wilder
315 S. Main Street, Payette, ID 83661
www.wicap.org
(208) 642-9086
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Week 29- What is an independent assessor? Who are they in Idaho? What do they do?
A29
What is an independent assessor? Who are they in Idaho? What do they do?
An independent assessor is someone who performs functional assessments and eligibility determinations for Medicaid waiver services.
Idaho's independent assessor is Liberty Healthcare.
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Week 28- Do you know what the transition process looks like from the early intervention program to the Special Education program in your school district?
A28
Do you know what the transition process looks like from the early intervention program to the Special Education program in your school district?
At least three months before your child’s third birthday, your service coordinator will call one or more transition conferences to discuss your child’s needs and preschool options. This conference could be combined with a regularly scheduled Individual Family Service Plan (IFSP) meeting.
You, your service coordinator, and other members of the IFSP team as appropriate will be included. Others may be invited as well. These people may include early childhood special education staff, representatives from community programs or services (such as a child-care provider, private preschool, or Head Start), and anyone else you would like to have there, such as grandparents, neighbors, or friends who know your child well.
Together, you and the team will address a variety of topics, such as the need for an evaluation to determine eligibility; goals, timelines, and team members’ responsibilities; your hopes, dreams, and concerns about your child; services and programs available; and your special education legal rights. Based on those discussions, you’ll develop a transition plan and
prepare for the change in programs when your child turns 3.
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Week 27 - What are your family travel hacks for travelling with kids with disabilities and special healthcare needs?
Q27
Idaho Parents Unlimited
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What are your family travel hacks for traveling with kids with disabilities and special healthcare needs?
Allison's Travel Hacks
I always suggest leaving first thing in the morning. Some of my kiddos will go back to sleep and if not they are the most fresh and least fussy. Since traveling can be long, especially road trips, I try to give my kids as many choices as possible so they feel some control. They pick their own snacks and we also keep a small container of toys. We love bringing Water WOW's. These just allow kids to color with water instead of needing to bring, and then lose, crayons. Finally, every three hours we take a break from driving and run around outside for 30 minutes. Safe summer travels from Allison at IPUL.
Amanda's Travel Hacks
My travel hacks are: I bring lots and lots of snacks, a tablet for games/movies, and lots of stops along the way. I also make sure to pack a baby carrier and a easy to travel stroller. I travel with a baby and a 3 year old so this requires lots of planning around the trip.
Angela's Travel Hacks
Travel Hacks: I'm thinking about flying because we have a trip to Florida coming up with our daughter who has developmental disabilities. Whenever we fly, I pack an extra carryon bag filled with the things she loves - her tablet, another tablet that has learning activities, a LeapStart book system, magazines, headphones, and lots of small bags of healthy snacks. We also remember to pack chargers, batteries, and a small screw driver. Also, we are sure to download as much as possible so that she has access in the sky for the entire twelve-hour duration when we may not have Wifi.
We will also be calling TSA Cares 72 hours ahead of our flight as they will fast track us through security all the way to the gate taking the stress out of air travel with her wheelchair.(1 (855) 787-2227)
Also, plan ahead for your destination. You never know what may be available for added accessibility. One time, we even rented a beach wheelchair!
Melissa's Travel Hacks
Camping with a child who has additional needs just takes a little more planning! Our family has found that yurts are a great option. Since our son is non-verbal, just in case he slips away, we keep emergency contact information on his shoe laces.
Sarah's Travel Hacks
We bought a packable folding camping cot to be used for changing our teenage son when we needed to bathroom cares. He has spastic quadriplegia cerebral palsy, uses a wheelchair, and requires 100% two person assist for transfers. Public restrooms are not an option for us anymore.
P. S. We do create privacy for him when we are not doing his cares in the van.
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Week 26 - What is a Medical Home?
A26
Idaho Parents Unlimited
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What is a medical home?
"The Patient Centered Medical Home (PCMH) is a partnership between the patient, Primary Care Provider (PCP), and a team of healthcare professionals to provide coordinated services that focus on the patient's total health needs." -Department of Health and Welfare PCMH Brochure
It is an approach to provide comprehensive primary care to adults, youth, and children. The PCMH will broaden access to primary care, while enhancing coordination.
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Week 25 - Independence Day Strategies
A25
Idaho Parents Unlimited
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Share your Independence Day safety strategies.
Allison's Independence Day strategies
As a mom of two boys with Autism and ADHD, I know that the Fourth of July can be an unnerving event. I have found a few tried and true tips that work for my neurodivergent crew. If we plan to see fireworks in a public setting we always park our car farthest from people and farthest from the display. I have a sensory seeker and an avoider so I always make sure to have a few of the following: noise cancelling headphones, weighted blankets, sunglasses, and ark grabbers. Generally we will also light some small fireworks at home. This is my preference because it allows me to offer my boys some choice. We arrange them by noise level and allow them to choose the order in which we light them. As we are lighting the fireworks we do a countdown to lessen the anxiety. Being home also gives us the ability to take lots of breaks if anyone becomes over-stimulated. When our celebration is over we put out an extra white noise machine to help drown out the continuing fireworks. When in doubt take a drive! It’s harder to hear the fireworks in a moving car.
Amanda's Independence Day strategies
My strategy for my kids is some headphones, and sitting a ways away from the street. My daughter loves watching fireworks but is very afraid of the sound. This hack has been amazing for us.
Angela's Independence Day strategies
I live in a neighborhood that doesn't allow fireworks. So, some alternatives to fireworks include bubbles, confetti poppers, or silly other musical instruments. Be sure to clean up the mess and keep away from firepits or bbq grills.
Melissa's Independence Day strategies
My son wants to do sparklers just like everyone, so this little hack has been awesome! Red solo cup, pop the sparkler through and no sparks on his hand! (I didn't have any pictures of him using it, but here's an old one—safety first, helmets and all)
Sarah's Independence Day strategies
Our family uses hunting earmuffs for the loud noises and we also avoid the strobe fireworks.
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Week 24 - Where are summer movie programs for kids in your area?
For week 24 we asked:
Where are summer movie programs for kids in your area?
Regal Theatres is offering the Summer Movie Express series, $2 Tuesdays and Wednesday on select movies.
Regal Edwards- Boise & Nampa
Regal Riverstone- Coeur d'Alene
Regal Edwards Grand Teton - Ammon
Screen on the Green every Thursday at 9 pm - Moscow
Kenworthy Performing Arts Centre $3 general admission for all ages. Films run at 1 PM on Tuesdays and Wednesdays, from June 14 until August 10. - Moscow
Lewiston Parks & Recreation's Movies Under the Stars at Pioneer Park Free family event Fridays, start time between 9:00 PM and 9:30 PM - Lewiston
Magic Valley Cinema 13 is offering $1 movies every Tuesday and Wednesday at 10 am.
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Week 23 - Do you know where your local library is and what programs may be available there?
For Week 23, we asked:
Do you know where your local library is and what programs may be available there?
Do you know where your local library is and what programs may be available there?
One good place to find your local library is the Idaho Commission for Libraries Website:
https://libraries.idaho.gov/idaho-library-directory/
Through this website there is also a list of activities for children, youth, and adults.
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Week 22 - Is your contact information correct and current with the Department of Health and Welfare?
For Week 22, we asked:
If your child currently has Medicaid is your contact information correct and current with the Department of Health and Welfare?
Information such as: addresses, income, medical status, etc. is important to update, they may be out of date for many families. If you think the following information could be incorrect, your child's coverage could be at risk or even discontinued if the Department of Health and Welfare cannot reach you to update you when the PHE ends.
To report a change:
Call the Idaho Department of Health and Welfare’s Benefits Customer Service center line: 877-456-1233.
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Week 21 - Where are Idaho's accessible Playgrounds?
For Week 21, we asked:
Where are Idaho's Accessible Playgrounds?
Treasure Valley
Adventure Island at Meridian's Settlers Park
Cottonwood Park
Cassia Park
West Park
(More listed at: https://www.cityofboise.org/departments/parks-and-recreation/accessible-recreation/)
Pocatello
Brooklyn's Playground
Idaho Falls
Tautphaus Park Equal Access Playground
Coeur d'Alene
McEuen Park with additional accessibility
Twin Falls
First Federal Bank Park
To see parks throughout the US that are accessible you can visit: https://www.accessibleplayground.net/playground-directory/?cn-s=&cn-cat=27
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Week 20 - What is Extended School Year (ESY)? How is it Different from Summer School?
For week 20 we asked:
Do you know about Idaho's YES (Youth Empowerment Services) Program?
Youth Empowerment Services (YES) is a system of care for youth under the age of 18 with serious emotional disturbance (SED). The
YES program provides many different supports and services, such as:
Assessment & Treatment Planning
- Assessment, Evaluation, and Testing (Comprehensive Diagnostic Assessment (CDA), Psychological/Neuropsychological Testing, Child and Adolescent Needs and Strengths (CANS)
- Coordinated care planning (Child and Family Teams (CFT), Individual Treatment Plans, Crisis and Safety Plans, Transition Plans)
Case Management & Intensive Care Coordination
- Case Management
- Targeted Care Coordination
- Wraparound Intensive Services
Treatment Services & Support Services
- Treatment services: Medication management, Psychotherapy, Skills building/Community Based Rehabilitation Services (CBRS), Behavioral Modification and Consultation, Day treatment, Intensive home and community-based services programs, Intensive Outpatient Programs, Therapeutic after-school and summer programs, Behavioral/therapeutic aide services (under development), Integrated substance use disorder services for individuals with co-occurring disorders (under development), and Inpatient psychiatric hospital
- Residential services: Therapeutic foster care (under development), Residential care (under development), Psychiatric residential treatment
- Support Services: Respite, Transportation, Psychoeducation & training, Family support, Youth support, Case consultation (under development), Flexible funds (under development)
Crisis Response Services (24/7)
- Crisis Respite (under development)
- Crisis Response Services
- Crisis Intervention
For more information go to
YES.IDAHO.GOV
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Week 19 - What is Extended School Year (ESY)? How is it Different from Summer School?
A19
For week 19 we asked:
What is Extended School Year (ESY)? How is it Different from Summer School?
“Extended school year services” means special education and related services provided beyond the regular school year that are:
- Provided to a student with a disability
- Beyond the normal school year of the district
- For students accessing special education who are at risk of losing an emerging skill
- In accordance with the student’s IEP
- At no cost to the parent and/or adult student.
- Students who may lose a skill during the summer break
- No new skills or goals are developed during ESY
Students must be found eligible for ESY; this is an optional service, students will still receive special services
Summer school is a General Education Opportunity to support students at risk of retention (being held back or losing credit for a course) and for credit recovery for high school.
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Week 18 - Are you aware of summer activities in your area?
For week 18 we asked: Are you aware of summer activities in your area?

--------------
Southern Idaho
AdVenture Program - The AdVenture program (Adaptive adVentures) has recreational activities for individuals with disabilities. This program is offered through Boise Parks and Recreation.
https://www.cityofboise.org/.../adapti.../adventure-program/
The Sensory Place: Children of all ages will find specialized equipment available for them with a mixture of equipment designed for children as young as 6 months, all the way to adolescent sized.
https://www.thesensoryplayce.com/
--------------
Northern Idaho
Camp All-Stars Specialized Needs Recreation- This is a non-profit organization that offers a program called Camp All-Stars. This is a camp program for ages 8-19.
https://snridaho.org/
--------------
Eastern Idaho
Adaptive Sports Programs for Kids- This program offers different programs geared towards children with special needs.
https://www.eastidahoadaptivesports.com/
Field of Angels - Baseball for physically and intellectually disabled children.
https://www.facebook.com/Field-of-Angels-132512310095467/
Courageous Kids Climbing - rock climbers showing children with special needs how to climb.
https://www.facebook.com/CourageousKidsClimbing
--------------
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Week 17 - What are the key differences between an IEP and a 504 Plan?
What are the key differences between an IEP and a 504 Plan?
IEP:
Cost to parents
Free
Eligibility
Formal process- Student has to meet "Three Prongs" to be considered eligible.
Services Provided
Specially designed instruction to meet the unique needs of a student with a disability. This includes supports and services in both the general education classroom and the special education classroom.
Protections
The Individuals with Disabilities Education Act (IDEA)
Individuals Involved in the Planning Process
Required IEP Team Members:
Parent (or adult student), General Education Teacher, Special Education Teacher and a District Representative and/or Administrator
Dispute Resolution
Parents and districts have access to Dispute Resolution through the state department of Education
504 Plan:
Cost to parents
Free
Eligibility
Each district has their own eligibility determination process.
Services Provided
Accommodations only. These remove any disability-related barriers to allow the student access to their education. These can be educational and/or behavioral.
Protections
Section 504 of the Rehabilitation Act of 1973
Individuals Involved in the Planning Process
There are no required team members. A school can implement accommodations without parent consent.
Dispute Resolution
Each district has their own Section 504 dispute resolution process. Parents can also file complaints with the Office for Civil Rights.
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Week 16 - Are charter schools responsible for providing special education and related services?
A16
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For week 16 we asked:
"Are charter schools responsible for providing special education and related services?"
Charter school are public schools. Students with disabilities who attend the charter school have the same rights as students who attend a public school. They are available to all students. They follow the same set of rule and regulations that public schools follow. Idaho law states that charter schools cannot discriminate against any student on any basis. They receive Federal funds, just like public schools do. They typically follow a unique form of curriculum however, they still participate in the state mandated assessments.
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Week 15 - What is compensatory education? (Recovery Services)
A15
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For Week 15 we asked:
What is compensatory education?
(Recovery Services)
Additional or supplemental services required to address gaps of service delivery due to school closures when Free Appropriate Public Education was not delivered to a student based on evidence gathered and by IEP team decision.
Recovery Services must be provided outside of the instructional day or year in addition to all other opportunities to which the student is already entitled.
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More Information: (external PDF links)
Week 14 - When it comes to Family Direct Support Services, do you know what expenses are allowable?
A14
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For week 14 we asked:
When it comes to Family Direct Support Services, do you know what expenses are allowable?
Allowable
- Allowable Goods and Services: The guidelines for allowable goods and services and any limitations related to the goods or service that may not be covered are listed below. These examples are intended to broadly describe each category and are not intended to limit purchases to items on this document.
- Personal Support (To help the child maintain health, safety, and basic quality of life ) such as bathroom modifications, Kitchen modifications, and assistance needed with ADLs.
- Emotional Support (To learn and practice behaviors consistent with goals while minimizing interfering behaviors) Assistance in practicing of appropriate expressions of emotions, desires or socially appropriate behaviors. This includes goods such as sensory equipment.
Non-Allowable
- Support Broker cost of business expenses
- State Plan services (e.g., Intervention, Counseling, Medical services)
- Education-related services.
- Recreational and adaptive recreational classes or fees
For a full list with details please refer to the "Guidelines for Allowable and Non-Allowable Expenses":
https://publicdocuments.dhw.idaho.gov/WebLink/DocView.aspx?id=6758&dbid=0&repo=PUBLIC-DOCUMENTS&cr=1
This information was retrieved directly from the Department of Health and Welfares website.
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Week 13 - Developmental Disability Services - what are the differences between the Tradtional and Family Directed Pathways?
For Week 13 we asked:
There are options when it comes to choosing which Developmental Disabilities pathway works best for your child and family. Do you know what the differences are between the Traditional and Family Directed pathways are?
Traditional
Under this pathway your child can receive services from a Developmental Disability Agency (DDA) or an Independent Provider of your choice. Under this service pathway, you may purchase:
- Respite – This service provides relief time for you to do activities outside or inside the home that you cannot do while you are caring for your child.
- Community-Based Supports – This service is designed to help your child participate in activities in their community as independently as possible and helps your child to explore their interests and practice things they have learned from other therapies.
- Education –This service offers parents education on topics such as understanding your child’s diagnosis, how to use adaptive equipment, and how to manage things your child has difficulty with.
Your Case Manager will get to know your child, their needs, and the needs you have for them and assist you to develop a plan to meet those needs. They will help you navigate Medicaid systems and obtain and coordinate both Medicaid funded services and non-Medicaid services and supports in your community.
Family Directed
This pathway provides you with more flexibility to choose, design and direct your child’s services to allow for more creative ways to access services. Under this service pathway, you may purchase:
- Community Support Worker Services - You can hire individuals of your choosing to assist your child in the home or community. You can hire an individual, called a Support Broker, who will write your child’s plan for services or you can write it yourself as a parent.
- Adaptive Equipment – This is equipment for your child. These items must be related to your child’s DD diagnosis and not available through their Medicaid card.
- Other Approved Services – includes music therapy, aqua therapy, hippotherapy, and therapeutic riding. These services require a recommendation and justification and must be provided by an individual qualified to deliver the service.
A Case Manager will help you navigate the process to enroll in Family Directed Services. After Family Directed enrollment is completed, continued Case Management is optional, but not required, to assist with activities that are beyond what the Support Broker is required or negotiated to deliver.
These two pathways are different, however the process to apply is the same. You can then make a decision on what works best for you and your family.
This information was retrieved directly from the Department of Health and Welfare's website.
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Week 12 - What Education Files do you not have access to?
For Week 12 we asked:
"Following up from last week's question about acciessing your child's educational records, do you know if there are any education files you do not have access to?"
Week 12 Answer:
According to the Individuals with Disabilities Education Act (IDEA) and Family Educational Rights and Privacy Act (FERPA), parents don't have a right to review documents including test instruments, test protocols, question booklets, or interpretive materials, which do not contain personally identifiable information relating to their child.
However, test protocols that include personally identifiable information or are co-mingled with education records may be education records within the meaning of the IDEA and FERPA, and, therefore, parents may have the right to inspect and review them.
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Week 11 - Do you have (and how to get) a current copy of your child's IEP?
For week 11 we asked:
"Heading into the busy IEP season, do you have a current copy of your child's IEP/eligibility?
Come back Friday and we will discuss why having these documents on hand is important and how to request copies if you need replacements."
A11
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A11 Answer (Part 1):
Knowing your child’s goals and eligibility helps you track progress and make necessary adjustments throughout the year. It also allows you the ability to be a more active participant on their child’s IEP team.
The Procedural Safeguards protect parents’ rights to inspect and review any education records relating to your child that are collected, maintained or used by your school district under Part B of IDEA. (Access Rights 34cfr§300.613)
In most cases, simply reaching out to your child’s teacher and requesting a copy of their IEP/eligibility is enough. However, sometimes a little more work is required.
A11 Answer (Part 2):
1. Contact your school district.
Ask for the office of the director of special education. Someone at this office can provide you a copy of the laws and procedures that cover which student records schools keep and for how long.
2. Ask the school what you need to do to see your child’s records.
If the school has a request form, fill it out. Ask the school for a copy of the form after you’ve filled it out.
3. Write a letter.
If the district doesn’t have a request form, write a letter requesting access to your child’s records. You can use this sample letter to help you write it.
4. Send the letter.
Send the letter to the school district’s director of special education. You may also copy (“CC”) your child’s principal, the special education teacher, and others involved with your child’s education, such as the school psychologist.
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Week 10 - What is a Center for Independent Living?
Centers for Independent Living are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities.
Centers for Independent Living Provide Peer Support, Information, and Referrals, Individual and Systems Advocacy, Independent Living Skills Training, and Transition Services.
Idaho has three regional Centers for Independent Living.
These Centers can be found here:
https://silc.idaho.gov/idaho-centers-for-independent-living/
Week 9 - Can you be paid to be your child's caregiver?
Questions And Answers With You in 2022 - Week 9 Answer
For week 9 we asked: "Can I be paid to be my child's caregiver?"
The current Public Health Emergency (PHE) has been extended through April 2022.
The Biden administration has promised a 60 day notice to states prior to the expiration of the PHE.
One of the temporary allowances granted In Idaho during the current PHE is that the parent may be the paid caregiver, when providing PCS (personal care services) as employed through a home health agency. A nurse reviewer through the Department of Health and Welfare will work to determine eligibility for these services.
To learn more, contact Regional Medicaid Services (RMS) in your region. https://healthandwelfare.idaho.gov/offices
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Week 8 - Our Favorite Ways To De-stress!
A8
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Our Favorite Ways to De-stress!
Sarah’s way to destress
My favorite things to do to destress are pausing to enjoy nature, marveling at the beauty and wonder that is all around. I also love to dance and abandon all of my thoughts for a few brief moments while doing so.
Angela’s way to destress
One of the easiest things that I can do to take a little bit of stress out of my life is to go hiking in the foothills of Boise which are right in my backyard. I can hike for a half-hour or four hours or all day if I wanted to. I love to breathe in the fresh air and take in some of the most beautiful views. The other thing that is an instant de-stressor for me is time with my daughter Amber. She's such a joyful human and all it takes is a hug from her or listening to music and singing songs, and all is right in the world!
Melissa’s way to destress
My favorite self care is my DIY music therapy. Mostly rap. The more old school, the better. On days where nothing is going right or the stress is just too much, I sneak away to my car and blast Eminem, Dr. Dre, and Warren G. The 2022 Super Bowl Halftime show was my jam. But it has to be LOUD. Then I scream the lyrics. If you have been next to me at a stoplight, my apologies. It's cathartic. My adrenaline kicks in, my focus is on the rhythm and beat, the noise drowns out my other stress and for a 3-5 minute song. Sometimes it may take a few songs, but this is my tried and true method :)
Amanda’s way to destress
My favorite ways to de-stress are to do absolutely anything outside like fishing, camping, even just going for a hike. My other favorite thing to that helps me de-stress is ink therapy!
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Week 7 - What do you love best about IPUL's Programs? What else would you like to see from us?
A7
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What do you love best about IPUL's Programs?
What else would you like to see from us?
Angela, Executive Director
"I know I'm a bit biased as the executive director but I'll tell you that my favorite things about IPUL are having the opportunity to bridge relationships between schools and parents, helping parents understand the IEP process, and helping to making sense of the entire Medicaid program in Idaho. I love when parents have that sigh of relief when they are finally connected to others who "get it." I love all of the opportunities that we get to partner on advocacy efforts that impact the systems are families our trying to navigate. I love, love, love our arts programming. Our Work of Art employment skill building program produces some of the most beautiful outcomes for youth who are entering adulthood and preparing themselves for this great big world! I've been with IPUL for more than twelve years now but they've been a part of my life since I found them when my daughter was about age two. She's turning 26 this month. IPUL has been life-changing for me in too many ways to count ."
"I love that you guys help where I didn’t even know I needed help! I wish I had this when my daughter was first placed in an IEP. I didn’t understand it and still don’t entirely! She needed so much advocating at the beginning and I wasn’t fully prepared. You are an amazing resource to empower parents! I’m new to you and your programs so I am just looking forward to seeing what all you have!"
"Idaho Parents Unlimited is essential to Idaho and the families they serve. Small, but mighty and it's incredible on how much they accomplish and how many they support. They have personally supported me through the IEP process, how to walk through dispute resolution issues, and just day to day questions that arise when it comes to special education. Highly recommend!"
"Idaho Parents Unlimited has been such a blessing in my families life. Besides being an advocate and knowledgeable, they're also there to listen. Friends and family are wonderful, but sometimes having someone that's passionate for people with disabilities is a wonderful option. Thank you Ipul for being an ear when I needed someone."
"The people within this organization, are so helpful. They are well educated and very kind and understanding."
"This is a great place to get information and resources regarding anything related to disability. Whether it is for you, your child or someone you know."
"I feel like I learn more and more everyday when I see posts from Idaho Parents Unlimited. It’s been an amazing experience learning about the different programs you provide as well as feeling confident that I know what my tools are when it comes to advocating for my daughter, and eventually my son if he needs it in the future."
"Seeing the difference in my roommates daughter after she was enrolled in the different programs you all advocate for was amazing. One minute no one could understand her the next she was a different kid. I hope that others can get the help they need to advocate for the kids in their lives that need too!"
"This is such a helpful conference! I learned so much and made wonderful friends."
"Parent Leadership is life changing!! Anyone who has an opportunity to attend should jump on it. I’m forever grateful for the chance I had to attend years ago."
"Thanks to Parent Leadership, I feel much better equipped to support other families in my community now. Thank you, IPUL!"
We love having the opportunity to support and educate all of our families! - IPUL Staff
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Week 6 - Do You Know What Mental Health Resources are Available in Idaho?
A6
Idaho Parents Unlimited
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Do you or your child struggle with mental health? Do you know what resources are available in Idaho?
Some great resources are:
Idaho Parents Unlimited (https://ipulidaho.org/),
Federation of Families for Children's Mental Health (https://www.idahofederation.org/),
Idaho Parent Network for Children's Mental Health (https://idahoparentnetwork.org/),
National Alliance on Mental Health (https://namiidaho.org/),
PBISWorld.com (https://pbisworld.com),
PBIS.org (https://pbis.org),
SESTA's padlet (https://padlet.com/idahosesta/erp1hvcwy6f6),
YES Website (https://yes.idaho.gov),
Optum Idaho (https://www.optumidaho.com/).
Crisis Numbers:
In case of emergency dial 911
Idaho Suicide Prevention Hotline: (208) 398-4357
National Suicide Lifeline: 1 (800) 273-8255
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Week 5 - New to Idaho? Our most common resources
< /p>
Idaho Parents Unlimited
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Are you new to Idaho? What has been your biggest challenge in locating resources for your child
with a disability/special health care needs?
Here are some links to some helpful resources:
- If you need help finding help, contact IPUL at
https://ipulidaho.org - Youth Empowerment Services serves youth under 18 who have a serious emotional disturbance:
https://yes.idaho.gov - Education related questions can be answered at the Idaho State Department of Education:
https://www.sde.idaho.gov/sped/ - Health related questions? Try The Department of Health and Welfare:
https://healthandwelfare.idaho.gov/services-programs/medicaid-health/about-medicaid-children - Looking for Support Groups? Many are listed on our support group page.
https://ipulidaho.org/res-par#parent-support-groups
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See less
Week 4 - What are your best advocacy strategies?
A4

Engage + Educate + Bridge + Learn
What are your best advocacy Strategies?
This week we did things a bit differently, answering our question on Facebook Live
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Click here to be taken to a recording of the Facebook Live where we answered this question!
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Top Row, left to right: Angela Lindig, Melissa Vian
Bottom Row, left to right: Sarah Tueller, Amanda Akers
Week 3 - Can your doctor prescribe an IEP...
Idaho Parents Unlimited
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Q3: Can my doctor write a prescription for an IEP for my child?
A3: In short, the answer is no, a doctor cannot prescribe an IEP. You might be surprised at how often this happens! While a doctor can provide important information about a child's medical diagnosis, the IEP team determines eligibility based on assessments and evaluations included in the eligibility process of which a parent must provide consent to administer. When a doctor writes an actual prescription for educational services, it can create confusion for parents and it can even strain relationships between parents and their child's school. As one person responded to our question, there is a three-prong approach toward eligibility, and a diagnosis alone does not automatically determine eligibility for special education.
To learn more about this, check out the Idaho Special Education Manual https://www.sde.idaho.gov/sped/sped-manual/
Chapter 4 includes all of the information on Evaluation and Eligibility including the three-prong approach:
Prong 1: The student has a disability according to the established Idaho criteria;
Prong 2: The student’s condition adversely affects educational performance; and
Prong 3: The student needs specially designed instruction.
If the answer to any of these is NO, the child may not be found eligible for special education.
They may, however, need accommodations and may be eligible for a 504 plan. We'll discuss that further in another weekly question. You can contact IPUL to learn more as well.
More information available at the following link:
https://www.sde.idaho.gov/.../Quick-Guide-Evaluation.pdf
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Week 2 - Do you know how to find out what is happening in...
A2
Idaho Parents Unlimited
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Do you know how to find out what is happening at the Idaho Legislature?
Thank you for your answers. Your answers are correct, and what a great idea to follow your legislator on social media. That's one great thing about Idaho, our Citizen Legislators make themselves easily available to their constituents.
You can access all of the official information at the Idaho Legislature website: legislature.idaho.gov Here you will be able access the Bill Center, Committees, learn about Public Testimony and so much more.
You can view what is happening in the committees daily through their live streaming site via Idaho Public Television at: https://www.idahoptv.org/shows/idahoinsession/Legislature/
If you're unsure of what bills to follow and how to follow them, visit the Bill Center or subscribe to an organization's newsletter that provides weekly legislative updates. One such newsletter comes from Idaho Voices for Children (click here and scroll to the bottom to subscribe: https://www.idahovoices.org/) They'll be tracking all legislation that impacts children in Idaho.
Another newsletter is through the Idaho Caregiver Alliance. You can subscribe here: https://tinyurl.com/4c8ytnyt
To learn more about how to advocate on a particular issue or how to provide testimony on a bill - In person at the Capitol or not - you can contact Idaho Parents Unlimited. We can assist you personally or you can attend one of our upcoming advocacy workshops to learn more.
#QuestionsWithYouIn2022
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Week 1 - What does IPUL Do?
#QuestionsWithYouIn2022 - first Question!
A1:
What does Idaho Parents Unlimited (IPUL) Do?
We Are the Families We Serve!
We are parents of children with disabilities and special health care needs ourselves, and we often are navigating the same education and health systems as you all are.
Technically speaking, Idaho Parents Unlimited is the Statewide Parent Training and Information Center and Family to Family Health Information Center providing resources, supports, workshops, and one to one assistance to families who have children with disabilities throughout the state at no cost to families.
We assist families who have children with disabilities and special health care needs - ages birth to adulthood - with any issue or system you may be touching.
We also have our IPUL Arts programming in which we provide high-quality arts education and instruction to children and youth in classrooms and community centers throughout Idaho via our teaching artists.
We also have a wonderful program that is in partnership with the Idaho Division of Vocational Rehabilitation called "Work of Art" that helps youth with disabilities develop important skills for employment.
Finally, we also work with our professional partners to assist them in working with families as well as on issues that include systems advocacy and policy work that impacts the families we serve.
To learn more, check out our "Now What" Guides on our website: https://ipulidaho.org/files/IPULNowWhatGuide.pdf