News

a stack of newspapers

#QuestionsWithYouIn2022

IPUL is running a new weekly event for 2022, where we pose questions for you to answer over on our Facebook page every Monday, then on Friday post an answer to that question! We are going to be updating them here as well, but for the full conversation be sure to check out our facebook page!

Week 0 - What this is

IPUL is doing something new in 2022!

#QuestionsWithYouIn2022

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Questions With You

Weekly questions posted on Mondays with an answer/clarification provided on Fridays. Have some fun learning and sharing in 2022!
#QuestionsWithYouIn2022

Facebook and Instagram: IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 38- What does Idaho’s Family Direct Services (FDS) say about service animals?

Week 38- What does Idaho’s Family Direct Services (FDS) say about service animals?

A38

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

What does Idaho’s Family Direct Services (FDS) say about service animals?

When FDS considers an application for a service dog the committee looks at the child’s qualifying diagnosis, the tasks/services that are requested for the dog to perform, what has already been tried to help the child with these tasks, and what has worked/not worked out of the interventions that have been tried. FDS can approve service dogs by definition in the Americans with Disabilities Act. FDS does not fund Emotional Support animals, therapy dogs, or animals other than dogs. The service dog has to be trained to do tasks for the child with a developmental disability. The qualifying developmental disabilities in Idaho are Autism, Cerebral Palsy, Epilepsy, Intellectual Disability, or something that a doctor has closely related to one of those four diagnoses.

Other FDS requirements: A dog that has been a pet cannot be “converted” into a Service dog. The dog has to be at least 1 year old and completed basic obedience training. The dog also has to have completed and passed a public access test or met the minimum standards for service dogs established by Assistance Dogs International. https://assistancedogsinternational.org/

*Page 2*

Service Dogs through Medicaid’s Children’s Developmental Disability Services Program

Service dogs and service dog related expenses can be obtained through the Medicaid Children’s
Developmental Disability Services Family Direction Program in certain circumstances. They are
funded as adaptive equipment to assist children with activities of daily living.

The Department will review requests for service dog related funding and make recommendations
based on current evidence-based practice and best practice guidelines. Evidence-based practice
and best practice guidelines include, but are not limited to, industry guidelines and standards on
service animal selection, acquisition and training. When necessary, the Department may ask for
additional information.

Attached is an application for funding of a service dog and/or service dog related expenses through
the Family Directed Service Option. Typically, a written response will be made to the parent(s) legal
guardian within 15 business days from when the application is complete and all the information that
the committee has requested has been submitted.

Steps in Applying for a Service Dog through Medicaid’s

Children’s Developmental Disability Services Program

1. If not already participating in the Medicaid’s Children’s Community Developmental Disability
Program, apply. Contact information can be obtained at
www.ChildrensDDservices.dhw.idaho.gov or by calling (208) 334-5512.
2. The Children’s Community Developmental Disability Program has two program options. The
“Traditional Model” and the “Family Directed Services” Model. Service dogs are available
through the Family Directed Services Model.
3. Indicate to Family and Community Services (FACS) staff that you wish to select the Family-
Directed Services Model.
4. Once you have gone through the Family-Directed Services process, and are ready to write an
annual plan (Support and Spending Plan), indicate that you wish to purchase a service dog.
5. You will be given an Application for a Service Dog. You will need to gather information
regarding the dog’s intended use, breeding and training. Once the application is complete
submit it to your regional FACS staff who will forward it to the Service Dog Funding Advisory
Committee. Typically, you will be notified of the decision within 15 business days.
6. You will be issued a Notice of Decision regarding plan approval.

If you have any questions regarding this process, please contact
Rachel Johnson at (208) 334-0603 or This email address is being protected from spambots. You need JavaScript enabled to view it.

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 37- Are emotional support animals and service animals the same?

Week 37- Are emotional support animals and service animals the same?

A37

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Are emotional support animals and Service animals the same?

ESA: Animals that provide comfort just by being with a person. Because they have not been trained to perform a specific job or task, they do not qualify as service animals under the ADA.

Service Animal:defined as a dog (or mini horse) that has been individually trained to do work or perform tasks for an individual with a disability.

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 36- Let's talk about service animals! What qualifies as a service animal in Idaho?

Week 36- Let's talk about service animals! What qualifies as a service animal in Idaho?

A36

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Let's talk about service animals! What qualifies as a service animal in Idaho?

Service animals consist of...

Dogs AND sometimes Miniature Horses!

Here is a link to the Service Animal Fact Sheet from the Americans with Disabilities Act (ADA) with more information.

https://www.ada.gov/service_animals_2010.htm

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 35-Does my child’s IEP follow them to college?

Week 35-Does my child’s IEP follow them to college?

A35

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Does my child’s IEP follow them to college?

In short, the answer is no. Individualized Education Plans do not follow you to college. Students may receive accommodations in college under Section 504 of the Rehabilitation Act. However, a 504 plan, such as they may have in school, doesn't actually follow them to college.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 34-Let's revisit the “three prongs” of eligibility for special education!

Week 34-Let's revisit the “three prongs” of eligibility for special education!

A34
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Let's revisit the “three prongs” of eligibility for special education!

- Does your child have a disability that falls within the 14 categories?
- Does your child’s condition adversely affect educational performance?
- Does your child need specially designed instruction?

14 eligibility categories in the SPED manual and the quick guide: CHAPTER 4: EVALUATION AND ELIGIBILITY

https://www.sde.idaho.gov/sped/files/shared/Idaho-Special-Education-Manual-2018-Final.pdf
https://www.sde.idaho.gov/sped/sped-manual/files/chapters/chapter-4-evaluation-and-eligibility/Quick-Guide-Three-Prong-Test-of-Eligibility.pdf

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.

Week 33- What are the Special Education programs offered in your district? What are they called? (i.e. Excel, ERR)

Week 33- What are the Special Education programs offered in your district? What are they called? (i.e. Excel, ERR)

A33

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

What are the Special Education programs offered in your district? What are they called? (i.e. Excel, ERR)

Special Education Program names differ from district to district. Some from around the state include: Excel, Extended Resource Room (ERR), Diverse Learning (DL), Resource Room, RISE (Reaching Independence through Support and Education), SLC (Structured Learning Center), Integrated Classrooms, ILC (Independent Learning Classrooms), PACE (Partners for a Collaborative Education), and BASICS (Behavior, Academics and Social Intervention care Systems).

It’s important to keep in mind that regardless of placement, IEP’s provide individualized instruction for your student.

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 32- It’s a new school year, I think there are new people at my child’s school. How do I know who to talk to about my child’s special education services? Where do I start?

Week 32- It’s a new school year, I think there are new people at my child’s school. How do I know who to talk to about my child’s special education services? Where do I start?

A32
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

It’s a new school year, I think there are new people at my child’s school. How do I know who to talk to about my child’s special education services? Where do I start?

First and foremost, speak with your child’s special education teacher. Special education teachers are on ground with your students and can usually assist with most things. If there are bigger problems or questions that your teacher cannot answer, the next step would be to reach out to the district’s Special Education Coordinator/Director. The State Department of Education also offers several dispute resolution options as well. As always you can contact IPUL, Idaho’s Parent Training and Information Center, for any questions or concerns.

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.

Week 31- What are soft skills, and what does that mean for young people with disabilities who are looking for a job?

Week 31- What are soft skills, and what does that mean for young people with disabilities who are looking for a job?

A31
What are soft skills, and what does that mean for young people with disabilities who are looking for a job?

Soft skills: personal characteristics that permit someone to interact effectively and amicably with other people.

Six Key Skill Areas:

1. Communication Skills - Learning when and how to communicate in a business setting is an important soft skill. Most youth only experience communication as it is at home, school, or with their friends and peers. However, communicating in the workplace is very different. Youth must learn how to communicate with supervisors, co-workers, and customers and /or clients. In addition, listening is a big component of communicating effectively.
2. Enthusiasm and Attitude - It is important for all to be enthusiastic and have a positive attitude in the workplace. Within the curriculum, youth learn how to turn negative thinking into positive thinking and displaying and discussing enthusiasm during an interview and on the job.
3. Teamwork - Successful businesses rely on team players and teaching youth the elements of teamwork is another essential soft skill. In the workplace, knowing how and when to lead and follow takes practice, as does knowing how to avoid unnecessary conflict. Further, knowing how to resolve conflicts, negotiate and compromise are all important skills for everyone to develop.

Six Key Skill Areas Continued:

4. Networking - Networking is essential to career growth and advancement. Networking is the process or practice of building and maintaining informal relationships or exchanges of information that are supportive of professional or career goals. Teaching youth the skills of making those connections about employment goals, interests, and desires through contacts from friends, family members, and acquaintances is an important soft skill.
5. Problem Solving and Critical Thinking - Problem solving and critical thinking refers to the ability to use knowledge, facts, and data to effectively solve workplace problems, as well as knowing how to use these skills in a variety of settings, including working with teams and working with disgruntled clients or customers. The curriculum teaches youth how to solve problems in a variety of ways and settings.
6. Professionalism - Professionalism contains many elements, including: resume creation, how to dress properly for work, attendance and timeliness, and appropriate use cell phones and computers. Further, being professional is also knowing how to communicate with supervisors, peers, customers, and / or clients. This section in the curriculum focuses on the five previous skills, but in a broader framework, teaching youth how it is important to know and use every skill for workplace success.

Credit: https://youth.gov/feature-article/soft-skills-pay-bills
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 30- Who is eligible for Head Start and how can you access the program?

Week 30- Who is eligible for Head Start and how can you access the program?

A30

Who is eligible for Head Start and how can you access the program?

Parents and children from birth to age five who are from families with incomes below the poverty guidelines may be eligible for Head Start and Early Head Start services. In addition, your family may be eligible if your child is:

Eligible for or receiving public assistance, such as Temporary Assistance for Needy Families (TANF), Supplemental Security Income (SSI), Supplemental Nutrition Assistance Program (SNAP), Nutrition Assistance Program (NAP) and the Food Distribution Program on Indian Reservations (FDPIR)
Experiencing homelessness (see the definition https://nche.ed.gov/mckinney-vento-definition)
In foster care
Disabled or has a serious health/mental health condition

Children with disabilities may be eligible without meeting income requirements.

Please contact your local Head Start program to learn more about eligibility.

Friends of Children & Families, Inc.
Serving Ages 4-5 in Boise, Garden City, Kuna, Meridian, and Mountain Home
Serving Ages 0-3 in Garden City and Glens Ferry
6225 North Meeker Place, Boise, ID 83713
www.focaf.org
(208) 344-9187

Community Council of Idaho Migrant and Seasonal Head Start
Serving Ages 0-5 in Aberdeen, Burley, Caldwell, Gooding, Idaho Falls, Mountain Home, Nampa, Twin Falls, and Weiser
317 Happy Day Blvd, Caldwell, ID 83607
www.communitycouncilofidaho.org/head_start
(208) 454-1652

Western Idaho Community Action Partnership Head Start
Serving Ages 0-3 in Caldwell, Donnelly, Emmett, Marsing, Payette, Weiser, and Wilder Serving Ages 3-5 in Caldwell, Donnelly, Emmett, Nampa, Payette, Weiser, and Wilder
315 S. Main Street, Payette, ID 83661
www.wicap.org
(208) 642-9086

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 29- What is an independent assessor? Who are they in Idaho? What do they do?

Week 29- What is an independent assessor? Who are they in Idaho? What do they do?

A29

What is an independent assessor? Who are they in Idaho? What do they do?

An independent assessor is someone who performs functional assessments and eligibility determinations for Medicaid waiver services.

Idaho's independent assessor is Liberty Healthcare.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho

ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 28- Do you know what the transition process looks like from the early intervention program to the Special Education program in your school district?

Week 28- Do you know what the transition process looks like from the early intervention program to the Special Education program in your school district?

A28

Do you know what the transition process looks like from the early intervention program to the Special Education program in your school district?

At least three months before your child’s third birthday, your service coordinator will call one or more transition conferences to discuss your child’s needs and preschool options. This conference could be combined with a regularly scheduled Individual Family Service Plan (IFSP) meeting.

You, your service coordinator, and other members of the IFSP team as appropriate will be included. Others may be invited as well. These people may include early childhood special education staff, representatives from community programs or services (such as a child-care provider, private preschool, or Head Start), and anyone else you would like to have there, such as grandparents, neighbors, or friends who know your child well.

Together, you and the team will address a variety of topics, such as the need for an evaluation to determine eligibility; goals, timelines, and team members’ responsibilities; your hopes, dreams, and concerns about your child; services and programs available; and your special education legal rights. Based on those discussions, you’ll develop a transition plan and
prepare for the change in programs when your child turns 3.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 27 - What are your family travel hacks for travelling with kids with disabilities and special healthcare needs?

Week 27 - What are your family travel hacks for travelling with kids with disabilities and special healthcare needs?

Q27
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

What are your family travel hacks for traveling with kids with disabilities and special healthcare needs?

Allison's Travel Hacks
I always suggest leaving first thing in the morning. Some of my kiddos will go back to sleep and if not they are the most fresh and least fussy. Since traveling can be long, especially road trips, I try to give my kids as many choices as possible so they feel some control. They pick their own snacks and we also keep a small container of toys. We love bringing Water WOW's. These just allow kids to color with water instead of needing to bring, and then lose, crayons. Finally, every three hours we take a break from driving and run around outside for 30 minutes. Safe summer travels from Allison at IPUL.

Amanda's Travel Hacks
My travel hacks are: I bring lots and lots of snacks, a tablet for games/movies, and lots of stops along the way. I also make sure to pack a baby carrier and a easy to travel stroller. I travel with a baby and a 3 year old so this requires lots of planning around the trip.

Angela's Travel Hacks
Travel Hacks: I'm thinking about flying because we have a trip to Florida coming up with our daughter who has developmental disabilities. Whenever we fly, I pack an extra carryon bag filled with the things she loves - her tablet, another tablet that has learning activities, a LeapStart book system, magazines, headphones, and lots of small bags of healthy snacks. We also remember to pack chargers, batteries, and a small screw driver. Also, we are sure to download as much as possible so that she has access in the sky for the entire twelve-hour duration when we may not have Wifi.
We will also be calling TSA Cares 72 hours ahead of our flight as they will fast track us through security all the way to the gate taking the stress out of air travel with her wheelchair.(1 (855) 787-2227)
Also, plan ahead for your destination. You never know what may be available for added accessibility. One time, we even rented a beach wheelchair!

Melissa's Travel Hacks
Camping with a child who has additional needs just takes a little more planning! Our family has found that yurts are a great option. Since our son is non-verbal, just in case he slips away, we keep emergency contact information on his shoe laces.

Sarah's Travel Hacks
We bought a packable folding camping cot to be used for changing our teenage son when we needed to bathroom cares. He has spastic quadriplegia cerebral palsy, uses a wheelchair, and requires 100% two person assist for transfers. Public restrooms are not an option for us anymore.
P. S. We do create privacy for him when we are not doing his cares in the van.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 26 - What is a Medical Home?

Week 26 - What is a Medical Home?

A26
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

What is a medical home?

"The Patient Centered Medical Home (PCMH) is a partnership between the patient, Primary Care Provider (PCP), and a team of healthcare professionals to provide coordinated services that focus on the patient's total health needs." -Department of Health and Welfare PCMH Brochure

It is an approach to provide comprehensive primary care to adults, youth, and children. The PCMH will broaden access to primary care, while enhancing coordination.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 25 - Independence Day Strategies

Week 25 - Independence Day Strategies

A25
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Share your Independence Day safety strategies.

Allison's Independence Day strategies
As a mom of two boys with Autism and ADHD, I know that the Fourth of July can be an unnerving event. I have found a few tried and true tips that work for my neurodivergent crew. If we plan to see fireworks in a public setting we always park our car farthest from people and farthest from the display. I have a sensory seeker and an avoider so I always make sure to have a few of the following: noise cancelling headphones, weighted blankets, sunglasses, and ark grabbers. Generally we will also light some small fireworks at home. This is my preference because it allows me to offer my boys some choice. We arrange them by noise level and allow them to choose the order in which we light them. As we are lighting the fireworks we do a countdown to lessen the anxiety. Being home also gives us the ability to take lots of breaks if anyone becomes over-stimulated. When our celebration is over we put out an extra white noise machine to help drown out the continuing fireworks. When in doubt take a drive! It’s harder to hear the fireworks in a moving car.

Amanda's Independence Day strategies
My strategy for my kids is some headphones, and sitting a ways away from the street. My daughter loves watching fireworks but is very afraid of the sound. This hack has been amazing for us.

Angela's Independence Day strategies
I live in a neighborhood that doesn't allow fireworks. So, some alternatives to fireworks include bubbles, confetti poppers, or silly other musical instruments. Be sure to clean up the mess and keep away from firepits or bbq grills.

Melissa's Independence Day strategies
My son wants to do sparklers just like everyone, so this little hack has been awesome! Red solo cup, pop the sparkler through and no sparks on his hand! (I didn't have any pictures of him using it, but here's an old one—safety first, helmets and all)

Sarah's Independence Day strategies
Our family uses hunting earmuffs for the loud noises and we also avoid the strobe fireworks.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 24 - Where are summer movie programs for kids in your area?

Week 24 - Where are summer movie programs for kids in your area?

For week 24 we asked:

Where are summer movie programs for kids in your area?

Regal Theatres is offering the Summer Movie Express series, $2 Tuesdays and Wednesday on select movies.
Regal Edwards- Boise & Nampa
Regal Riverstone- Coeur d'Alene
Regal Edwards Grand Teton - Ammon

Screen on the Green every Thursday at 9 pm - Moscow
Kenworthy Performing Arts Centre $3 general admission for all ages. Films run at 1 PM on Tuesdays and Wednesdays, from June 14 until August 10. - Moscow
Lewiston Parks & Recreation's Movies Under the Stars at Pioneer Park Free family event Fridays, start time between 9:00 PM and 9:30 PM - Lewiston
Magic Valley Cinema 13 is offering $1 movies every Tuesday and Wednesday at 10 am.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 23 - Do you know where your local library is and what programs may be available there?

Week 23 - Do you know where your local library is and what programs may be available there?

For Week 23, we asked:

Do you know where your local library is and what programs may be available there?

Do you know where your local library is and what programs may be available there?

One good place to find your local library is the Idaho Commission for Libraries Website:
https://libraries.idaho.gov/idaho-library-directory/
Through this website there is also a list of activities for children, youth, and adults.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 22 - Is your contact information correct and current with the Department of Health and Welfare?

Week 22 - Is your contact information correct and current with the Department of Health and Welfare?

For Week 22, we asked:

If your child currently has Medicaid is your contact information correct and current with the Department of Health and Welfare?

Information such as: addresses, income, medical status, etc. is important to update, they may be out of date for many families. If you think the following information could be incorrect, your child's coverage could be at risk or even discontinued if the Department of Health and Welfare cannot reach you to update you when the PHE ends.

To report a change:
Call the Idaho Department of Health and Welfare’s Benefits Customer Service center line: 877-456-1233.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 21 - Where are Idaho's accessible Playgrounds?

For Week 21, we asked:

Where are Idaho's Accessible Playgrounds?

Treasure Valley
Adventure Island at Meridian's Settlers Park
Cottonwood Park
Cassia Park
West Park
(More listed at: https://www.cityofboise.org/departments/parks-and-recreation/accessible-recreation/)

Pocatello
Brooklyn's Playground

Idaho Falls
Tautphaus Park Equal Access Playground

Coeur d'Alene
McEuen Park with additional accessibility

Twin Falls
First Federal Bank Park

To see parks throughout the US that are accessible you can visit: https://www.accessibleplayground.net/playground-directory/?cn-s=&cn-cat=27

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 20 - What is Extended School Year (ESY)? How is it Different from Summer School?

Week 20 - What is Extended School Year (ESY)? How is it Different from Summer School?

For week 20 we asked:
Do you know about Idaho's YES (Youth Empowerment Services) Program?

Youth Empowerment Services (YES) is a system of care for youth under the age of 18 with serious emotional disturbance (SED). The
YES program provides many different supports and services, such as:

Assessment & Treatment Planning

Assessment, Evaluation, and Testing (Comprehensive Diagnostic Assessment (CDA), Psychological/Neuropsychological Testing, Child and Adolescent Needs and Strengths (CANS)
Coordinated care planning (Child and Family Teams (CFT), Individual Treatment Plans, Crisis and Safety Plans, Transition Plans)

Case Management & Intensive Care Coordination

Case Management
Targeted Care Coordination
Wraparound Intensive Services

Treatment Services & Support Services

Treatment services: Medication management, Psychotherapy, Skills building/Community Based Rehabilitation Services (CBRS), Behavioral Modification and Consultation, Day treatment, Intensive home and community-based services programs, Intensive Outpatient Programs, Therapeutic after-school and summer programs, Behavioral/therapeutic aide services (under development), Integrated substance use disorder services for individuals with co-occurring disorders (under development), and Inpatient psychiatric hospital
Residential services: Therapeutic foster care (under development), Residential care (under development), Psychiatric residential treatment
Support Services: Respite, Transportation, Psychoeducation & training, Family support, Youth support, Case consultation (under development), Flexible funds (under development)

Crisis Response Services (24/7)

Crisis Respite (under development)
Crisis Response Services
Crisis Intervention

For more information go to
YES.IDAHO.GOV

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 19 - What is Extended School Year (ESY)? How is it Different from Summer School?

A19

For week 19 we asked:
What is Extended School Year (ESY)? How is it Different from Summer School?

“Extended school year services” means special education and related services provided beyond the regular school year that are:

Provided to a student with a disability
Beyond the normal school year of the district
For students accessing special education who are at risk of losing an emerging skill
In accordance with the student’s IEP
At no cost to the parent and/or adult student.
Students who may lose a skill during the summer break
No new skills or goals are developed during ESY
Students must be found eligible for ESY; this is an optional service, students will still receive special services

Summer school is a General Education Opportunity to support students at risk of retention (being held back or losing credit for a course) and for credit recovery for high school.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 18 - Are you aware of summer activities in your area?

Week 18 - Are you aware of summer activities in your area?

For week 18 we asked: Are you aware of summer activities in your area?

--------------
Southern Idaho

AdVenture Program - The AdVenture program (Adaptive adVentures) has recreational activities for individuals with disabilities. This program is offered through Boise Parks and Recreation.
https://www.cityofboise.org/.../adapti.../adventure-program/
The Sensory Place: Children of all ages will find specialized equipment available for them with a mixture of equipment designed for children as young as 6 months, all the way to adolescent sized.
https://www.thesensoryplayce.com/
--------------
Northern Idaho

Camp All-Stars Specialized Needs Recreation- This is a non-profit organization that offers a program called Camp All-Stars. This is a camp program for ages 8-19.
https://snridaho.org/

--------------
Eastern Idaho

Adaptive Sports Programs for Kids- This program offers different programs geared towards children with special needs.
https://www.eastidahoadaptivesports.com/
Field of Angels - Baseball for physically and intellectually disabled children.
https://www.facebook.com/Field-of-Angels-132512310095467/
Courageous Kids Climbing - rock climbers showing children with special needs how to climb.
https://www.facebook.com/CourageousKidsClimbing

--------------
For more information or resources contact IPUL:
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884
/IdahoParentsUnlimited
/IPULIdaho

Week 17 - What are the key differences between an IEP and a 504 Plan?

What are the key differences between an IEP and a 504 Plan?

IEP:

Cost to parents
Free

Eligibility
Formal process- Student has to meet "Three Prongs" to be considered eligible.

Services Provided
Specially designed instruction to meet the unique needs of a student with a disability. This includes supports and services in both the general education classroom and the special education classroom.

Protections
The Individuals with Disabilities Education Act (IDEA)

Individuals Involved in the Planning Process
Required IEP Team Members:
Parent (or adult student), General Education Teacher, Special Education Teacher and a District Representative and/or Administrator

Dispute Resolution
Parents and districts have access to Dispute Resolution through the state department of Education

504 Plan:

Cost to parents
Free

Eligibility
Each district has their own eligibility determination process.

Services Provided
Accommodations only. These remove any disability-related barriers to allow the student access to their education. These can be educational and/or behavioral.

Protections
Section 504 of the Rehabilitation Act of 1973

Individuals Involved in the Planning Process
There are no required team members. A school can implement accommodations without parent consent.

Dispute Resolution
Each district has their own Section 504 dispute resolution process. Parents can also file complaints with the Office for Civil Rights.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 16 - Are charter schools responsible for providing special education and related services?

Week 15 - What is compensatory education? (Recovery Services)

A15
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

For Week 15 we asked:

What is compensatory education?
(Recovery Services)

Additional or supplemental services required to address gaps of service delivery due to school closures when Free Appropriate Public Education was not delivered to a student based on evidence gathered and by IEP team decision.

Recovery Services must be provided outside of the instructional day or year in addition to all other opportunities to which the student is already entitled.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

More Information: (external PDF links)

https://www.sde.idaho.gov/re-opening/files/student-learning/sped/toolkit-outline/Recovery-Service-Decision-Tree.pdf

https://www.sde.idaho.gov/re-opening/files/student-learning/sped/toolkit-outline/Recovery-Services-Quick-Guide.pdf

Week 14 - When it comes to Family Direct Support Services, do you know what expenses are allowable?

A14
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

For week 14 we asked:

When it comes to Family Direct Support Services, do you know what expenses are allowable?

Allowable

Allowable Goods and Services: The guidelines for allowable goods and services and any limitations related to the goods or service that may not be covered are listed below. These examples are intended to broadly describe each category and are not intended to limit purchases to items on this document.
Personal Support (To help the child maintain health, safety, and basic quality of life ) such as bathroom modifications, Kitchen modifications, and assistance needed with ADLs.
Emotional Support (To learn and practice behaviors consistent with goals while minimizing interfering behaviors) Assistance in practicing of appropriate expressions of emotions, desires or socially appropriate behaviors. This includes goods such as sensory equipment.

Non-Allowable

Support Broker cost of business expenses
State Plan services (e.g., Intervention, Counseling, Medical services)
Education-related services.
Recreational and adaptive recreational classes or fees

For a full list with details please refer to the "Guidelines for Allowable and Non-Allowable Expenses":

https://publicdocuments.dhw.idaho.gov/WebLink/DocView.aspx?id=6758&dbid=0&repo=PUBLIC-DOCUMENTS&cr=1

This information was retrieved directly from the Department of Health and Welfares website.

Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 13 - Developmental Disability Services - what are the differences between the Tradtional and Family Directed Pathways?

Week 13 - Developmental Disability Services - what are the differences between the Tradtional and Family Directed Pathways?

For Week 13 we asked:

There are options when it comes to choosing which Developmental Disabilities pathway works best for your child and family. Do you know what the differences are between the Traditional and Family Directed pathways are?

Traditional

Under this pathway your child can receive services from a Developmental Disability Agency (DDA) or an Independent Provider of your choice. Under this service pathway, you may purchase:

Respite – This service provides relief time for you to do activities outside or inside the home that you cannot do while you are caring for your child.
Community-Based Supports – This service is designed to help your child participate in activities in their community as independently as possible and helps your child to explore their interests and practice things they have learned from other therapies.
Education –This service offers parents education on topics such as understanding your child’s diagnosis, how to use adaptive equipment, and how to manage things your child has difficulty with.

Your Case Manager will get to know your child, their needs, and the needs you have for them and assist you to develop a plan to meet those needs. They will help you navigate Medicaid systems and obtain and coordinate both Medicaid funded services and non-Medicaid services and supports in your community.

Family Directed

This pathway provides you with more flexibility to choose, design and direct your child’s services to allow for more creative ways to access services. Under this service pathway, you may purchase:

Community Support Worker Services - You can hire individuals of your choosing to assist your child in the home or community. You can hire an individual, called a Support Broker, who will write your child’s plan for services or you can write it yourself as a parent.
Adaptive Equipment – This is equipment for your child. These items must be related to your child’s DD diagnosis and not available through their Medicaid card.
Other Approved Services – includes music therapy, aqua therapy, hippotherapy, and therapeutic riding. These services require a recommendation and justification and must be provided by an individual qualified to deliver the service.

A Case Manager will help you navigate the process to enroll in Family Directed Services. After Family Directed enrollment is completed, continued Case Management is optional, but not required, to assist with activities that are beyond what the Support Broker is required or negotiated to deliver.

These two pathways are different, however the process to apply is the same. You can then make a decision on what works best for you and your family.

This information was retrieved directly from the Department of Health and Welfare's website.

#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 12 - What Education Files do you not have access to?

Week 12 - What Education Files do you not have access to?

For Week 12 we asked:
"Following up from last week's question about acciessing your child's educational records, do you know if there are any education files you do not have access to?"

Week 12 Answer:

According to the Individuals with Disabilities Education Act (IDEA) and Family Educational Rights and Privacy Act (FERPA), parents don't have a right to review documents including test instruments, test protocols, question booklets, or interpretive materials, which do not contain personally identifiable information relating to their child.

However, test protocols that include personally identifiable information or are co-mingled with education records may be education records within the meaning of the IDEA and FERPA, and, therefore, parents may have the right to inspect and review them.
#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 11 - Do you have (and how to get) a current copy of your child's IEP?

For week 11 we asked:

"Heading into the busy IEP season, do you have a current copy of your child's IEP/eligibility?
Come back Friday and we will discuss why having these documents on hand is important and how to request copies if you need replacements."
A11
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

A11 Answer (Part 1):

Knowing your child’s goals and eligibility helps you track progress and make necessary adjustments throughout the year. It also allows you the ability to be a more active participant on their child’s IEP team.

The Procedural Safeguards protect parents’ rights to inspect and review any education records relating to your child that are collected, maintained or used by your school district under Part B of IDEA. (Access Rights 34cfr§300.613)

In most cases, simply reaching out to your child’s teacher and requesting a copy of their IEP/eligibility is enough. However, sometimes a little more work is required.

A11 Answer (Part 2):

1. Contact your school district.
Ask for the office of the director of special education. Someone at this office can provide you a copy of the laws and procedures that cover which student records schools keep and for how long.

2. Ask the school what you need to do to see your child’s records.
If the school has a request form, fill it out. Ask the school for a copy of the form after you’ve filled it out.

3. Write a letter.
If the district doesn’t have a request form, write a letter requesting access to your child’s records. You can use this sample letter to help you write it.

4. Send the letter.
Send the letter to the school district’s director of special education. You may also copy (“CC”) your child’s principal, the special education teacher, and others involved with your child’s education, such as the school psychologist.

Week 10 - What is a Center for Independent Living?

Centers for Independent Living are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities.

Centers for Independent Living Provide Peer Support, Information, and Referrals, Individual and Systems Advocacy, Independent Living Skills Training, and Transition Services.

Idaho has three regional Centers for Independent Living.

These Centers can be found here:
https://silc.idaho.gov/idaho-centers-for-independent-living/

Week 9 - Can you be paid to be your child's caregiver?

Questions And Answers With You in 2022 - Week 9 Answer

For week 9 we asked: "Can I be paid to be my child's caregiver?"

The current Public Health Emergency (PHE) has been extended through April 2022.

The Biden administration has promised a 60 day notice to states prior to the expiration of the PHE.

One of the temporary allowances granted In Idaho during the current PHE is that the parent may be the paid caregiver, when providing PCS (personal care services) as employed through a home health agency. A nurse reviewer through the Department of Health and Welfare will work to determine eligibility for these services.

To learn more, contact Regional Medicaid Services (RMS) in your region. https://healthandwelfare.idaho.gov/offices

#QuestionsWithYouIn2022

Facebook and Instagram: /IdahoParentsUnlimited

Twitter: /IPULIdaho

ipulidaho.org

This email address is being protected from spambots. You need JavaScript enabled to view it.

208.342.5884

Week 8 - Our Favorite Ways To De-stress!

A8
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Our Favorite Ways to De-stress!

Sarah’s way to destress

My favorite things to do to destress are pausing to enjoy nature, marveling at the beauty and wonder that is all around. I also love to dance and abandon all of my thoughts for a few brief moments while doing so.

Angela’s way to destress

One of the easiest things that I can do to take a little bit of stress out of my life is to go hiking in the foothills of Boise which are right in my backyard. I can hike for a half-hour or four hours or all day if I wanted to. I love to breathe in the fresh air and take in some of the most beautiful views. The other thing that is an instant de-stressor for me is time with my daughter Amber. She's such a joyful human and all it takes is a hug from her or listening to music and singing songs, and all is right in the world!

Melissa’s way to destress

My favorite self care is my DIY music therapy. Mostly rap. The more old school, the better. On days where nothing is going right or the stress is just too much, I sneak away to my car and blast Eminem, Dr. Dre, and Warren G. The 2022 Super Bowl Halftime show was my jam. But it has to be LOUD. Then I scream the lyrics. If you have been next to me at a stoplight, my apologies. It's cathartic. My adrenaline kicks in, my focus is on the rhythm and beat, the noise drowns out my other stress and for a 3-5 minute song. Sometimes it may take a few songs, but this is my tried and true method :)

Amanda’s way to destress

My favorite ways to de-stress are to do absolutely anything outside like fishing, camping, even just going for a hike. My other favorite thing to that helps me de-stress is ink therapy!

Week 7 - What do you love best about IPUL's Programs? What else would you like to see from us?

A7
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

What do you love best about IPUL's Programs?
What else would you like to see from us?

Angela, Executive Director
"I know I'm a bit biased as the executive director but I'll tell you that my favorite things about IPUL are having the opportunity to bridge relationships between schools and parents, helping parents understand the IEP process, and helping to making sense of the entire Medicaid program in Idaho. I love when parents have that sigh of relief when they are finally connected to others who "get it." I love all of the opportunities that we get to partner on advocacy efforts that impact the systems are families our trying to navigate. I love, love, love our arts programming. Our Work of Art employment skill building program produces some of the most beautiful outcomes for youth who are entering adulthood and preparing themselves for this great big world! I've been with IPUL for more than twelve years now but they've been a part of my life since I found them when my daughter was about age two. She's turning 26 this month. IPUL has been life-changing for me in too many ways to count ."

"I love that you guys help where I didn’t even know I needed help! I wish I had this when my daughter was first placed in an IEP. I didn’t understand it and still don’t entirely! She needed so much advocating at the beginning and I wasn’t fully prepared. You are an amazing resource to empower parents! I’m new to you and your programs so I am just looking forward to seeing what all you have!"

"Idaho Parents Unlimited is essential to Idaho and the families they serve. Small, but mighty and it's incredible on how much they accomplish and how many they support. They have personally supported me through the IEP process, how to walk through dispute resolution issues, and just day to day questions that arise when it comes to special education. Highly recommend!"

"Idaho Parents Unlimited has been such a blessing in my families life. Besides being an advocate and knowledgeable, they're also there to listen. Friends and family are wonderful, but sometimes having someone that's passionate for people with disabilities is a wonderful option. Thank you Ipul for being an ear when I needed someone."

"The people within this organization, are so helpful. They are well educated and very kind and understanding."

"This is a great place to get information and resources regarding anything related to disability. Whether it is for you, your child or someone you know."

"I feel like I learn more and more everyday when I see posts from Idaho Parents Unlimited. It’s been an amazing experience learning about the different programs you provide as well as feeling confident that I know what my tools are when it comes to advocating for my daughter, and eventually my son if he needs it in the future."

"Seeing the difference in my roommates daughter after she was enrolled in the different programs you all advocate for was amazing. One minute no one could understand her the next she was a different kid. I hope that others can get the help they need to advocate for the kids in their lives that need too!"

"This is such a helpful conference! I learned so much and made wonderful friends."

"Parent Leadership is life changing!! Anyone who has an opportunity to attend should jump on it. I’m forever grateful for the chance I had to attend years ago."

"Thanks to Parent Leadership, I feel much better equipped to support other families in my community now. Thank you, IPUL!"

We love having the opportunity to support and educate all of our families! - IPUL Staff

Week 6 - Do You Know What Mental Health Resources are Available in Idaho?

A6
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Do you or your child struggle with mental health? Do you know what resources are available in Idaho?

Some great resources are:
Idaho Parents Unlimited (https://ipulidaho.org/),
Federation of Families for Children's Mental Health (https://www.idahofederation.org/),
Idaho Parent Network for Children's Mental Health (https://idahoparentnetwork.org/),
National Alliance on Mental Health (https://namiidaho.org/),
PBISWorld.com (https://pbisworld.com),
PBIS.org (https://pbis.org),
SESTA's padlet (https://padlet.com/idahosesta/erp1hvcwy6f6),
YES Website (https://yes.idaho.gov),
Optum Idaho (https://www.optumidaho.com/).

Crisis Numbers:
In case of emergency dial 911
Idaho Suicide Prevention Hotline: (208) 398-4357
National Suicide Lifeline: 1 (800) 273-8255

Week 5 - New to Idaho? Our most common resources

Week 5 - New to Idaho? Our most common resources

A5
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Are you new to Idaho? What has been your biggest challenge in locating resources for your child
with a disability/special health care needs?

Here are some links to some helpful resources:

If you need help finding help, contact IPUL at
https://ipulidaho.org
Youth Empowerment Services serves youth under 18 who have a serious emotional disturbance:
https://yes.idaho.gov
Education related questions can be answered at the Idaho State Department of Education:
https://www.sde.idaho.gov/sped/
Health related questions? Try The Department of Health and Welfare:
https://healthandwelfare.idaho.gov/services-programs/medicaid-health/about-medicaid-children
Looking for Support Groups? Many are listed on our support group page.
https://ipulidaho.org/res-par#parent-support-groups

See less

Week 4 - What are your best advocacy strategies?

Week 4 - What are your best advocacy strategies?

A4
Idaho Parents Unlimited
Engage + Educate + Bridge + Learn

What are your best advocacy Strategies?

This week we did things a bit differently, answering our question on Facebook Live

Idaho Parents Unlimited

Engage + Educate + Bridge + Lead

Click here to be taken to a recording of the Facebook Live where we answered this question!

#QuestionsWithYouIn2022
Facebook: /IdahoParentsUnlimited
Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Top Row, left to right: Angela Lindig, Melissa Vian
Bottom Row, left to right: Sarah Tueller, Amanda Akers

Week 3 - Can your doctor prescribe an IEP...

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Q3: Can my doctor write a prescription for an IEP for my child?

A3: In short, the answer is no, a doctor cannot prescribe an IEP. You might be surprised at how often this happens! While a doctor can provide important information about a child's medical diagnosis, the IEP team determines eligibility based on assessments and evaluations included in the eligibility process of which a parent must provide consent to administer. When a doctor writes an actual prescription for educational services, it can create confusion for parents and it can even strain relationships between parents and their child's school. As one person responded to our question, there is a three-prong approach toward eligibility, and a diagnosis alone does not automatically determine eligibility for special education.
To learn more about this, check out the Idaho Special Education Manual https://www.sde.idaho.gov/sped/sped-manual/

Chapter 4 includes all of the information on Evaluation and Eligibility including the three-prong approach:
    Prong 1: The student has a disability according to the established Idaho criteria;
    Prong 2: The student’s condition adversely affects educational performance; and
    Prong 3: The student needs specially designed instruction.
If the answer to any of these is NO, the child may not be found eligible for special education.

They may, however, need accommodations and may be eligible for a 504 plan. We'll discuss that further in another weekly question. You can contact IPUL to learn more as well.

More information available at the following link:
https://www.sde.idaho.gov/.../Quick-Guide-Evaluation.pdf
#QuestionsWithYouIn2022
Facebook and Instagram: /IdahoParentsUnlimited
Twitter: /IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 2 - Do you know how to find out what is happening in...

A2
Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Do you know how to find out what is happening at the Idaho Legislature?
Thank you for your answers. Your answers are correct, and what a great idea to follow your legislator on social media. That's one great thing about Idaho, our Citizen Legislators make themselves easily available to their constituents.

You can access all of the official information at the Idaho Legislature website: legislature.idaho.gov Here you will be able access the Bill Center, Committees, learn about Public Testimony and so much more.

You can view what is happening in the committees daily through their live streaming site via Idaho Public Television at: https://www.idahoptv.org/shows/idahoinsession/Legislature/

If you're unsure of what bills to follow and how to follow them, visit the Bill Center or subscribe to an organization's newsletter that provides weekly legislative updates. One such newsletter comes from Idaho Voices for Children (click here and scroll to the bottom to subscribe: https://www.idahovoices.org/) They'll be tracking all legislation that impacts children in Idaho.

Another newsletter is through the Idaho Caregiver Alliance. You can subscribe here: https://tinyurl.com/4c8ytnyt

To learn more about how to advocate on a particular issue or how to provide testimony on a bill - In person at the Capitol or not - you can contact Idaho Parents Unlimited. We can assist you personally or you can attend one of our upcoming advocacy workshops to learn more.
#QuestionsWithYouIn2022
Facebook:/IdahoParentsUnlimited
Instagram:/IdahoParentsUnlimited
Twitter/IPULIdaho
ipulidaho.org
This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Week 1 - What does IPUL Do?

#QuestionsWithYouIn2022 - first Question!

A1:

What does Idaho Parents Unlimited (IPUL) Do?

We Are the Families We Serve!

We are parents of children with disabilities and special health care needs ourselves, and we often are navigating the same education and health systems as you all are.
Technically speaking, Idaho Parents Unlimited is the Statewide Parent Training and Information Center and Family to Family Health Information Center providing resources, supports, workshops, and one to one assistance to families who have children with disabilities throughout the state at no cost to families.
We assist families who have children with disabilities and special health care needs - ages birth to adulthood - with any issue or system you may be touching.
We also have our IPUL Arts programming in which we provide high-quality arts education and instruction to children and youth in classrooms and community centers throughout Idaho via our teaching artists.
We also have a wonderful program that is in partnership with the Idaho Division of Vocational Rehabilitation called "Work of Art" that helps youth with disabilities develop important skills for employment.
Finally, we also work with our professional partners to assist them in working with families as well as on issues that include systems advocacy and policy work that impacts the families we serve.

To learn more, check out our "Now What" Guides on our website: https://ipulidaho.org/files/IPULNowWhatGuide.pdf

IPUL News

Site updates

We updated our logos that we make available for our partners to use to a new design, available over on this page.

And we've posted our 2021 Year in Review document

Once Upon a Gene Podcast - Featuring Angela Lindig

Enjoy a little personal piece from IPUL's Executive Director, Angela Lindig, who had the opportunity to talk about her daughter's recent genetic diagnosis on the Once Upon a Gene podcast.

EPISODE HIGHLIGHTS

Can you tell me about yourself and your family?

I am the Director of a parent center and my work is in working with children who have disabilities and my own child is what brought me to this work. My daughter Amber is 25 years old and is dealing with an ultra rare genetic condition that was diagnosed when she was 23. I knew something wasn't right when Amber was 4 months old. It was at a class reunion we attended where everyone had babies that I was able to observe. Amber was floppy and had low muscle tone and she wasn't doing things I noticed the other babies doing. We talked to the pediatrician about the delays we saw and at 5 months old, she had an MRI done that didn't reveal anything and we started early intervention services. The testing continued for many years looking for what Amber's condition could be.

If Amber didn't get her diagnosis, what would be different in her health journey?

Her diagnosis is HNRNPH2 disorder, a mutation on that gene on the x chromosome and there are only about 100 identified families affected. We're all learning together and we've identified a lot of characteristics in Amber, like a cortical vision impairment and self-injurious behaviors. The collective knowledge will lead to treatments of symptoms and the whole condition.

Was there grief in getting a new diagnosis?

I had no grief with the new diagnosis. I burst into tears when we got the diagnosis because it was such incredible relief to finally know and have the opportunity to connect with other people.

Can you share about Amber's adult independent living arrangement?

I have a friend who has a daughter that's two years younger than Amber and has angelman syndrome. We talked and then brought our daughters into the conversation and they wanted to live together. We rented a town home to ensure they would be compatible roommates and we arranged a supportive living agency to provide staff. After 9 months when we realized the arrangement was working well, we bought a home the girls live in and we stay very connected every day. Amber is thriving and the support staff keeps her as involved in the community as possible. There may even be opportunities for supportive employment in the future, dependent on her continued developmental growth.

Either Click here or the image to listen to the podcast

We reorganized, modernized, and cleaned up our IPUL Health section!

We've added a new page in our COVID-19 section that is all about the Vaccine rollout. Including great resources like the Act Early Idaho Resiliency Toolkit

Supporting Students with Disabilities during COVID by Beth Markley

When school goes online what happens to students who have special needs that make remote learning especially difficult? How do schools meet their obligation to provide a free and appropriate education under the law when students can't be in the building? How can parents, educators, and administrators work together to ensure no one is left behind?

Our guest this week is Angela Lindig, executive director of Idaho Parents Unlimited that assists families of children with disabilities and special health care needs.

Click the image above or this link to listen to the interview.

---==

IPUL's e-news Update

IPUL's e-News Updates:

These are posted here the week after they go out via email

2022

IPUL's E-News: September 30, 2022 - #QuestionsWithYouIn2022 # 38: Service Animals pt. 3 | Youth Corner

IPUL's E-News: September 23, 2022 - #QuestionsWithYouIn2022 # 37: Service Animals pt. 2 | See our Lunch and Learn | Next Week! September IEP Training Pt 2

IPUL's E-News: September 16, 2022 - #QuestionsWithYouIn2022 # 36: Service Animals | Upcoming Lunch and Learn | September IEP Training Pt 2

IPUL's E-News: August 19, 2022 - #QuestionsWithYouIn2022 # 32 | Upcoming Lunch and Learn | Things we Shared | Multiple new Statewide IEP Trainings for September

IPUL's E-News: August 12, 2022 - #QuestionsWithYouIn2022 # 31

IPUL's E-News: August 5, 2022 - #QuestionsWithYouIn2022 # 30

IPUL's E-News: July 29 2022 - #QuestionsWithYouIn2022 # 29 | Youth Corner | Executive Dysfunction Online Summit for Parents | Decoding Dyslexia | Our Health And Welfare

IPUL's E-News: July 22 2022 - #QuestionsWithYouIn2022 # 28 | Listening Sessions for the State Plan for Independent Living

IPUL's E-News: July 15, 2022 - #QuestionsWithYouIn2022 # 27 | Change the World for your Child | Homecare Workforce | FCC Affordable Connections | August's Training Information

IPUL's E-News: July 8, 2022 - #QuestionsWithYouIn2022 # 26 | IPUL's Training Schedule for 2022-2023 through July 2023 | 3 Seats Available for Virtual Work of Art! | Rare Artist Program Call for Submissions

IPUL's E-News: July 1, 2022 - #QuestionsWithYouIn2022 # 25 | Updates to #24! | Accessible Park Opening

IPUL's E-News: June 24, 2022 - #QuestionsWithYouIn2022 # 24 | Welcome Allison! | June Youth Corner

IPUL's E-News: June 17, 2022 - #QuestionsWithYouIn2022 # 23 | Things we shared| IPUL is hiring!

IPUL's E-News: June 10, 2022 - #QuestionsWithYouIn2022 # 22 | CPT Billing Error | IPUL is hiring!

IPUL's E-News: June 3, 2022 - #QuestionsWithYouIn2022 # 21 | IPUL is hiring! (Two Positions!) | Things IPUL shared this week

IPUL's E-News: May 27, 2022 - #QuestionsWithYouIn2022 # 20 | Youth Corner | June's Upcoming Training! | IPUL is hiring! (Two Positions!)

May 13, 2022 - no e-news this week!

IPUL's E-News: May 6, 2022 - #QuestionsWithYouIn2022 # 18 | Recent Work of Art Video | Things we shared this week | Eastern Idaho, here we come!

IPUL's E-News: April 29, 2022 - #QuestionsWithYouIn2022 # 17 | Things we shared this week

IPUL's E-News: April 22, 2022 - QuestionsWithYouIn2022 # 16 | Youth Corner

IPUL's E-News: April 15, 2022 - #QuestionsWithYouIn2022 # 15 | Stories We Shared

IPUL's E-News: April 8, 2022 - #QuestionsWithYouIn2022 # 14 | IPUL Parent Leadership April 11-15 | Events happening in Eastern Idaho

IPUL's E-News: April 1, 2022 - #QuestionsWithYouIn2022 # 13 | IPUL is Hiring | Things we Shared This Week

IPUL's E-News: March 25, 2022 - #QuestionsWithYouIn2022 # 12 | IPUL is Hiring - Looking for an Administrative Assistant | Things we Shared This Week

IPUL's E-News: March 18, 2022 - #QuestionsWithYouIn2022 # 11 | Things we Shared | April Training Information

IPUL's E-News: March 11, 2022 - #QuestionsWithYouIn2022 # 10 | March Youth Corner

IPUL's E-News: March 4, 2022 - #QuestionsWithYouIn2022 # 9 | IPUL on the Road! North Idaho Events! | Calling Idaho Artists!

IPUL's E-News: February 25, 2022 - #QuestionsWithYouIn2022 # 8 | Lunch And Learn from this week | IPUL comes to North Idaho for live trainings!

IPUL's E-News: February 18, 2022 - #QuestionsWithYouIn2022 # 7 | Rare Disease Day 2022 - Why a Genetic Diagnosis Matters | More Stories We Shared

IPUL's E-News: February 11, 2022 - #QuestionsWithYouIn2022 # 6 | How to Access Legislative Agendas in Idaho | Register for the March Training! | February Youth Corner

February 04, 2022 - #QuestionsWithYouIn2022 answer 5 | Fred Riggers Day Events | Lots of News

January 28, 2022 - #QuestionsWithYouIn2022 answer 4 LIVE! | Lewiston School District News | Parent Leadership Development Institute

January 21, 2022 - Parent Leadership Institute 2022 | #QandAWithYou question 3 answer! | Idaho Needs Substitutes | Medicaid Matters | Family Voices wants your input!

January 14, 2022 - #Youth Corner, Volume 1 | #QandAWithYou question 2 answer! | Positive Behavior Interventions and Supports | Fred Riggers Disability Awareness Day 2022

January 7, 2022 - #QuestionsWithYouIn2022 | Start the New Year Organized (next week!) | Tools For Life 2022

==--==--

IPUL's Youth Corner

September 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Sept. 2022 Vol.9

YOUTH CORNER
Hispanic Heritage Month

?The day of September 15 is significant because it is the anniversary of independence for Latin American countries Costa Rica, El Salvador, Guatemala, Honduras and Nicaragua. In addition, Mexico and Chile celebrate their independence days on September 16 and September 18, respectively. Also, Columbus Day or D?a de la Raza, which is October 12, falls within this 30 day period.? -Census.gov

Good ways to celebrate Hispanic Heritage Month are:

- Learning how to cook some Latin inspired dishes.
- Play Mexican Bingo (Loter?a)
- Learn about some different Latin traditions
- Watch Latin inspired movies such as "Encanto" or "Coco"

Fall Breakfast Idea

Pumpkin Pancakes

INGREDIENTS
1? c. all purpose flour
2 tsps. baking powder
? tsps. baking soda
2 ? tsps. Pumpkin Pie Spice
? tsp. salt
? c. pure pumpkin (such as Libby?s)
3 tablespoons unsalted butter, melted
1 cup milk
2 large eggs
Vegetable oil

INSTRUCTIONS
In a medium bowl, whisk together the flour, baking powder, baking soda, pumpkin pie spice, and salt. Set aside.
In a large bowl, whisk together the pumpkin and melted butter. Whisk in the milk, followed by the eggs and maple syrup. Add the flour mixture and whisk until smooth.
Heat a griddle or nonstick pan over medium heat and coat lightly with vegetable oil. Drop about ? cup batter from a small ladle or large spoon and cook until the puffy and bubbling on top and golden and crisp on the bottom, about 2 minutes. Flip and cook until the bottom is golden, about 30 seconds.

https://www.onceuponachef.com/recipes/pumpkin-pancakes.html

#YouthCorner
Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Sept. 2022 | Vol.9

Mes de la Herencia Hispana

?El d?a 15 de Septiembre es significativo porque es el aniversario de la independencia de los pa?ses latinoamericanos Costa Rica, El Salvador, Guatemala, Honduras y Nicaragua. Adem?s, M?xico y Chile celebran sus d?as de independencia el 16 y el 18 de Septiembre, respectivamente. Adem?s, el D?a de la Raza o D?a de la Raza, que es el 12 de Octubre, cae dentro de este per?odo de 30 d?as?. -Census.gov

Buenas maneras de celebrar el Mes de la Herencia Hispana son:

- Aprendiendo a cocinar algunos platos de inspiraci?n Latina
- Juega Loter?a
- Aprende sobre algunas tradiciones Latinas diferentes.
- Mira pel?culas de inspiraci?n latina como "Encanto" o "Coco"

Idea de Desayuno de Oto?o

Panqueques De Calabaza
INGREDIENTES
1? taza harina para todo uso
2 cucharaditas Levadura en polvo
? cucharaditas bicarbonato de sodio
2 ? cucharaditas Pastel de calabaza especias
? cucharadita sal
? taza calabaza pura (como la de Libby)
3 cucharadas de mantequilla sin sal, derretida
1 taza de leche
2 huevos grandes
Aceite vegetal
INSTRUCCIONES
En un taz?n mediano, mezcle la harina, el polvo de hornear, el bicarbonato de sodio, las especias para pastel de calabaza y la sal. Dejar de lado.
En un taz?n grande, mezcle la calabaza y la mantequilla derretida. Batir la leche, seguido de los huevos y el jarabe de arce. Agregue la mezcla de harina y bata hasta que quede suave.
Caliente una plancha o sart?n antiadherente a fuego medio y cubra ligeramente con aceite vegetal. Coloque aproximadamente ? de taza de masa de un cuchar?n peque?o o una cuchara grande y cocine hasta que est? hinchada y burbujeante en la parte superior y dorada y crujiente en la parte inferior, aproximadamente 2 minutos. Voltee y cocine hasta que el fondo est? dorado, aproximadamente 30 segundos.

https://www.onceuponachef.com/recipes/pumpkin-pancakes.html

#YouthCorner
Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

August 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Youth Corner
Aug. 2022 Vol.8

Back to School Month

Now that we are back to school, what are some good ways to prepare for being back?
-Make sure your have all your school supplies
-Pack your backpack the week of school
-Packing your lunch the night before
-Having your school schedule printed out if you have multiple classes
-Going to your open house to meet your teachers and find your classrooms
-Making sure to start your bedtime routine 1-2 weeks prior to school starting

What are your favorite school supplies?
Sparkly pens? Gel Pens? Ballpoint pens?
Yellow highlighters? Blue highlighters? Purple highlighters?
Monthly planners? Daily planners? Weekly Planners?

#YouthCorner
Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

*Spanish*

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Rincón Juvenil
Ago. 2022 | Vol.8

Mes de Regreso a la Escuela

Ahora que regresamos a la escuela, ¿cuáles son algunas buenas maneras de prepararse para el regreso?
-Asegúrate de tener todos sus útiles escolares.
-Empaca su mochila la semana de clases
-Prepara su almuerzo la noche anterior
-Ten su horario escolar impreso si tienes varias clases
-Ve a su día de puertas abiertas para conocer a sus maestros y sus aulas
-Asegúrese de comenzar su rutina a la hora de acostarse 1 o 2 semanas antes de comenzar la escuela

¿Cuáles son tus útiles escolares favoritos?
Pluma brillante? Pluma de gel? Bolígrafos?
¿Iluminadores amarillos? ¿Iluminadores azules? ¿Iluminadores morados?
¿Planificadores mensuales? ¿Planificadores diarios? ¿Planificadores semanales?

#YouthCorner
Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

July 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Youth Corner

Jul. 2022 Vol.7

Inclusive Sports

Inclusive sports means that no one is excluded or required to face additional rules or scrutiny to fairly and fully participate. Inclusive behaviors in youth sports provide opportunities and options to people of all backgrounds, ages and abilities.

Inspiring Athletes

Erin Popovich is an American swimmer, she was born with achondroplasia, a disorder that restricted the growth of her limbs.

An American surfer, Bethany Hamilton was an up-and-coming pro-surfer from Hawaii when her arm was bitten off by a shark. A month later she returned to surfing.

James Abbott is a professional American baseball pitcher who played for California, New York, Chicago, and Milwaukee. He was born without a right hand.

Sarah Reinersten she was born with a bone growth disorder, leading to her left leg to be amputated above the knee.

Anthony Robles is a two-time Arizona State Wrestling champion. Born without a right leg,

National Lasagna Day

Ingredients:
1 pound lean ground beef
4 cups tomato-basil pasta sauce
6 uncooked lasagna noodles
1 (15-ounce) container ricotta cheese
2 ½ cups (10 ounces) shredded mozzarella cheese
¼ cup hot water

Instructions:
Cook beef in a large skillet over medium heat, stirring until it crumbles and is no longer pink; drain. Stir in pasta sauce.
Spread one-third of meat sauce in a lightly greased 11- x 7-inch baking dish; layer with 3 noodles and half each of ricotta cheese and mozzarella cheese. (The ricotta cheese layers will be thin.) Repeat procedure; spread remaining one-third of meat sauce over mozzarella cheese. Slowly pour 1/4 cup hot water around inside edge of dish. Tightly cover baking dish with 2 layers of heavy-duty aluminum foil.
Bake at 375° for 45 minutes; uncover and bake 10 more minutes. Let stand 10 minutes before serving.

Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Credit:
myrecipes.com
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Rincón Juvenil

Jul. 2022 | Vol.7

Deportes Inclusivos

Los deportes inclusivos significan que nadie está excluido o obligado a enfrentar reglas adicionales o escrutinio para participar justa y plenamente. Los comportamientos inclusivos en los deportes juveniles brindan oportunidades y opciones a personas de todos los orígenes, edades y habilidades.

Deportistas inspiradores

Erin Popovich es una nadadora estadounidense, nació con acondroplasia, un trastorno que restringía el crecimiento de sus extremidades.

Una surfista estadounidense, Bethany Hamilton, era una prometedora surfista profesional de Hawái cuando un tiburón le mordió el brazo. Un mes después volvió a surfear.

James Abbott es un lanzador de béisbol estadounidense profesional que jugó para California, Nueva York, Chicago y Milwaukee. Nació sin mano derecha.

Sarah Reinersten nació con un trastorno del crecimiento óseo, lo que llevó a que le amputaran la pierna izquierda por encima de la rodilla.

Anthony Robles es dos veces campeón de Arizona State Wrestling. Nacido sin una pierna derecha,

Día Nacional de la Lasaña

Ingredientes:
1 libra de carne molida magra
4 tazas de salsa para pasta con tomate y albahaca
6 fideos de lasaña crudos
1 recipiente (15 onzas) de queso ricotta
2 ½ tazas (10 onzas) de queso mozzarella rallado
¼ taza de agua caliente

Instrucciones:
Cocine la carne en una sartén grande a fuego medio, revolviendo hasta que se desmorone y ya no esté rosada; fuga. Agregue la salsa para pasta.
Unte un tercio de la salsa de carne en una fuente para hornear de 11 x 7 pulgadas, ligeramente engrasada; capa con 3 fideos y la mitad de cada uno de queso ricotta y queso mozzarella. (Las capas de queso ricotta serán delgadas). Repita el procedimiento; unte el tercio restante de la salsa de carne sobre el queso mozzarella. Vierta lentamente 1/4 taza de agua caliente alrededor del borde interior del plato. Cubra bien la fuente para hornear con 2 capas de papel de aluminio resistente.
Hornee a 375° por 45 minutos; destape y hornee 10 minutos más. Dejar reposar 10 minutos antes de servir.

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Crédito:
myrecipes.com
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

June 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Youth Corner
Jun. 2022 Vol.6
Summer Safety Month

With it being Summer Safety Month, I wanted to share some safety tips.
Sunscreen is an important thing to apply in the summer. This helps prevent skin cancer, sunburn, and aging. Here are some tips on how to apply sunscreen and how often:
Apply sunscreen liberally to all uncovered skin (avoid putting it inside your mouth and eyes).
Reapply at least every two hours.

If you don’t have much hair, apply sunscreen to the top of your head or wear a hat.
Another important safety tip is to make sure you are staying hydrated in the summer. Dehydration can lead to fatigue, light-headedness, or throbbing headaches. Here are some tips:
Be aware of weather conditions
Consider the level of activity
Drink plenty of liquids
Avoid caffeinated beverages
Eat foods with high water content
Dress wisely

Strawberry Limeade
Ingredients:
1/2 cup lime juice
1/3 cup sugar
1/3 cup water
1/2 lb sliced strawberries
20-30 mint leaves
2 cups cold water

Instructions:
To make the simple syrup, combine the sugar and water in a saucepan, and cook over medium high heat for 5-10 minutes until the sugar is dissolved and the liquid is clear.
In a large mason jar or a pitcher, combine the lime juice, simple syrup, strawberries, mint, and water. Let sit in the refrigerator for 2-3 hours. Serve and enjoy!

Credit:
Fifteen Spatulas

-----------------------

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Jun. 2022 | Vol.6

Mes de la Seguridad en el Verano

Dado que es el Mes de la Seguridad en el Verano, quería compartir algunos consejos de seguridad.
El protector solar es una cosa importante para aplicar en el verano. Esto ayuda a prevenir el cáncer de piel, las quemaduras solares y el envejecimiento. Aquí hay algunos consejos sobre cómo aplicar protector solar y con qué frecuencia:
Aplique protector solar generosamente en toda la piel descubierta (evite ponerlo dentro de la boca y los ojos).

Vuelva a aplicar al menos cada dos horas.
Si no tienes mucho cabello, aplica protector solar en la parte superior de la cabeza o usa un sombrero.
Otro consejo de seguridad importante es asegurarse de mantenerse hidratado en el verano. La deshidratación puede provocar fatiga, mareos o dolores de cabeza palpitantes. Aquí hay algunos consejos:
Esté atento a las condiciones climáticas
Tenga en cuenta el nivel de actividad.
Beba muchos líquidos
Evite las bebidas con cafeína
Comer alimentos con alto contenido de agua.
Vístete sabiamente

Limonada de Fresa
Ingredientes:
1/2 taza de jugo de lima
1/3 taza de azúcar
1/3 taza de agua
1/2 libra de fresas en rodajas
20-30 hojas de menta
2 tazas de agua fría
Instrucciones:
Para hacer el jarabe simple, combine el azúcar y el agua en una cacerola y cocine a fuego medio alto durante 5-10 minutos hasta que el azúcar se disuelva y el líquido sea transparente.
En un tarro grande o una jarra, combine el jugo de lima, el jarabe simple, las fresas, la menta y el agua. Deje reposar en el refrigerador durante 2-3 horas. ¡Servir y disfrutar!

Crédito:
Fifteen Spatulas

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

May 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
May 2022 Vol. 5
Youth Corner

Mental Health Matters
Mental Health Awareness Month

When to seek help:

Declining in school
Acting out
Difficulty concentrating
Changes in sleep/eating habits
Excessive worry/fear
(For a full list, contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.)

Where to find help:

Contact your Provider
Reach out to your school counselor
Your parent/guardian
A teacher or other trusted adult

If you or someone you know has a mental illness, is struggling emotionally, or has concerns about their mental health, there are ways to get help. Use these resources to find help for you, a friend, or a family member.

Idaho Crisis and Suicide Hotline (208) 398-4357

National Suicide Prevention Lifeline 1 (800) 273-8255

Be kind to your mind

Resources for Mental Health

YES Program- yes.idaho.gov is one the resources that may be available to youth. They have different resources for parents and children, including safety plans, advocacy groups, and crisis numbers.
Idaho Federation of Families for Children's Mental Health- fyidaho.org/youth/ has some different resources for youth such as places they may retreat tp for peer support.
Understood.org has some tools for managing emotions, school supports, and accommodations both in school and workplace.
PBISworld.com - This can be helpful to see what tools may ease things such as anxiety. This can be helpful for accommodations in school and work.
National Alliance on Mental Illness (NAMI) - has resources for youth and parents, warning signs and tools.

Credit:
NIH
NAMI
UNDERSTOOD
FYIDAHO
YES

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
May. 2022 | Vol. 5
Rincón Juvenil

La Salud Mental Importa
Mes de Concientización Sobre la Salud Mental.

Cuándo buscar ayuda:

Decadencia en la escuela
Actuando fuero de normal
Dificultad para concentrarse
Cambios en los hábitos de sueño/alimentación
Preocupación/miedo excesivo

(Para obtener una lista completa, contáctenos en This email address is being protected from spambots. You need JavaScript enabled to view it.)

Dónde encontrar ayuda:

Póngase en contacto con su proveedor
Comuníquese con el consejero de su escuela
Tu padre/tutor
Un maestro u otro adulto de confianza

Si usted o alguien que conoce tiene una enfermedad mental, tiene problemas emocionales o tiene inquietudes sobre su salud mental, hay formas de obtener ayuda. Utilice estos recursos para encontrar ayuda para usted, un amigo o un familiar.

Línea Directa de Crisis y Suicidio de Idaho (208) 398-4357

Línea Nacional de Prevención del Suicidio 1 (800) 273-8255

Se amable con tu mente

Recursos Para la Salud Mental

Programa YES- yes.idaho.gov es uno de los recursos que pueden estar disponibles para los jóvenes. Tienen diferentes recursos para padres e hijos, incluidos planes de seguridad, grupos de defensa y números de crisis.
Idaho Federation of Families for Children's Mental Health- fyidaho.org/youth/ tiene algunos recursos diferentes para los jóvenes, como lugares a los que pueden retirarse para recibir apoyo entre pares.
Understood.org - tiene algunas herramientas para manejar las emociones, apoyo escolar y adaptaciones tanto en la escuela como en el lugar de trabajo.
PBISworld.com - Esto puede ser útil para ver qué herramientas pueden aliviar cosas como la ansiedad. Esto puede ser útil para las adaptaciones en la escuela y el trabajo.
Alianza Nacional sobre Enfermedades Mentales (NAMI): tiene recursos para jóvenes y padres, señales de advertencia y herramientas.

Crédito:
NIH
NAMI
UNDERSTOOD
FYIDAHO
YES

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

April 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Apr. 2022 Vol. 4

Youth Corner
Autism Awareness (Acceptance) Month

Guide to Transition
(15-17 Years Old)

Life Skills

Arrive on time to appointments, work, & activities
Carry state ID card or driver's license & a copy of health insurance card
Schedule your own appointments
Talk about future living arrangements

(For full list email: This email address is being protected from spambots. You need JavaScript enabled to view it. for a transition wheel)

School, Career, & Health

At 15, incorporate transition goals into IEP
Update IEP/Transition goals as often as necessary, at least once per school year
Student attends IEP meetings to work on self-advocacy
Goals should be individualized to student's interest

(For full list email: This email address is being protected from spambots. You need JavaScript enabled to view it. for a transition wheel)

Resources for Autism

One great resource is https://idahoat.org/ this is where you would find assistive technology (A.T.). A.T. is any device or piece of equipment that helps individuals with disabilities. Some other helpful things are fidget toys, weighted blankets, and bubble lamps.

Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Credit:
Idaho AT
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Abr. 2022 | Vol. 4

Rincón Juvenil
Mes de Concientización (Aceptación) sobre el Autismo

Guía para la Transición
(15-17 años)

Habilidades para la vida

Llegar a tiempo a las citas, el trabajo y las actividades.
Llevar tarjeta de identificación estatal o licencia de conducir y una copia de la tarjeta de seguro médico
Programe sus propias citas
Hablar sobre futuros arreglos de vivienda.

(Para obtener la lista completa, envíe un correo electrónico a: This email address is being protected from spambots. You need JavaScript enabled to view it. para una rueda de transición)

Escuela, carrera y salud

A los 15 años, incorporar objetivos de transición en el IEP
Actualizar las metas del IEP/Transición con la frecuencia necesaria, al menos una vez por año escolar
El estudiante asiste a las reuniones del IEP para trabajar en la autodefensa
Los objetivos deben individualizarse según el interés del estudiante.

(Para obtener la lista completa, envíe un correo electrónico a: This email address is being protected from spambots. You need JavaScript enabled to view it. para una rueda de transición)

Recursos para el autismo

Un gran recurso es https://idahoat.org/ aquí es donde encontrará tecnología de asistencia (A.T.). A.T. es cualquier dispositivo o pieza de equipo que ayuda a las personas con discapacidades. Algunas otras cosas útiles son los juguetes inquietos, las mantas con peso y las lámparas de burbujas.

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Crédito:
Idaho AT
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

March 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Mar. 2022 Vol. 3

Youth Corner
National Reading Month

Reading is not only fun but also has many benefits. Its an essential part of your education and helps develop professional development. There are also health benefits such as cognitive function, memory, and helps alleviate stress.

Ways to Celebrate National Reading Month

Read a book by Dr. Seuss
Read something new
Create a reading challenge
Join a book club
Read your favorite book
Visit your local library

What are some popular books for youth currently?

English:
The Girl Who Fell Beneath the Sea by Axie Oh
You Truly Assumed by Laila Sabreen
Fire Becomes Her by Rosiee Thor

Spanish:
Dominicana by Angie Cruz
The Poet X by Elizabeth Acevedo
La casa en Mango Street by Sandra Cisneros

Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Credit:
Goodreads
Barnes and Noble
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Mar. 2022 | Vol. 3

Rincón Juvenil
Mes Nacional de la Lectura

Leer no solo es divertido, sino que también tiene muchos beneficios. Es una parte esencial de su educación y ayuda a desarrollar el desarrollo profesional. También hay beneficios para la salud como la función cognitiva, la memoria y ayuda a aliviar el estrés.

Formas de Celebrar el Mes Nacional de la Lectura
Leer un libro del Dr. Seuss
Leer algo nuevo
Crear un desafío de lectura
Únete a un club de lectura
Lee tu libro favorito
Visite su biblioteca local

¿Cuáles son algunos libros populares para jóvenes actualmente?

Inglés:
The Girl Who Fell Beneath the Sea by Axie Oh
You Truly Assumed by Laila Sabreen
Fire Becomes Her by Rosiee Thor

Español:
Dominicana by Angie Cruz
The Poet X by Elizabeth Acevedo
La casa en Mango Street by Sandra Cisneros

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Crédito:
Goodreads
Barnes and Noble
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Febrary 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Feb. 2022 Vol. 2

Youth Corner

National Teen Dating Violence Awareness Month

Warning signs of abuse:
Intense Jealousy
Physical/Sexual Harm
Outbursts/Mood Swings
Keeping you from friends and family

Myths vs Fact
Victims provoke the abuser by making them jealous, making them think you want sex. (myth)
Dating violence is never a victim’s fault. (fact)
The abuse will eventually stop as the teen gets older, it’s just a phase. (myth)
Abusive relationships show a pattern of controlled behaviors that can last a lifetime. (fact)

Stats:
According to a 2021 Preventing Teen Dating Violence Report:
1 in 11 female teens and 1 in 14 male high school students reported experiencing physical violence in the last year.
1 in 8 female and 1 in 26 male high school students reported experiencing sexual violence in the last year.
What are some resources available to you?

In case of emergency call 911.
Crisis Resources:
Visit the Idaho Coalition Against Sexual and Domestic Violence's Website at https://idvsa.org/initiatives/center-healthy-teen-relationship/
You can call the National Dating Abuse Helpline at 1-866-331-9474 (1-866-331-84 53 TTY), or visit www.loveisrespect.org, or chat online from 4pm-12am CST. Launch the live chat by clicking LIVE CHAT bubble.

Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Credit:
Idaho Coalition Against Sexual and Domestic Violence
Love is Respect
Live Well San Diego
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Click here to download this in PDF format / Clic aqui para descargar esto en formato PDF

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead

Feb. 2022 | Vol. 2

Rincón Juvenil

Mes nacional de concientización sobre la violencia en el noviazgo adolescente

Señales de advertencia de abuso:
Celos intensos
Daño físico/sexual
Arrebatos/Cambios de humor
Mantenerte alejado de amigos y familiars

Mitos contra realidad
Las víctimas provocan al abusador poniéndoles celosos, haciéndoles creer que quieres sexo. (mito)
La violencia en el noviazgo nunca es culpa de la víctima. (realidad)
El abuso eventualmente se detendrá a medida que el adolescente crezca, es solo una fase. (mito)
Las relaciones abusivas muestran un patrón de conductas controladas que pueden durar toda la vida. (realidad)

Estadísticas:
Según el Informe de prevención de la violencia en el noviazgo adolescente de 2021:
1 de cada 11 mujeres adolescentes y 1 de cada 14 hombres estudiantes de secundaria informaron haber sufrido violencia física en el último año.
1 de cada 8 mujeres y 1 de cada 26 hombres estudiantes de secundaria informaron haber sufrido violencia sexual en el último año.
¿Cuáles son algunos recursos disponibles para usted?

En caso de emergencia llame al 911.

Recursos de Crisis:
Visite el sitio web de la Coalición de Idaho contra la violencia sexual y doméstica en https://idvsa.org/initiatives/center-healthy-teen-relationship/
Puede llamar a la Línea de ayuda nacional contra el abuso en el noviazgo al 1-866-331-9474 (1-866-331-84 53 TTY), visitar www.loveisrespect.org o chatear en línea de 4 p. m. a 12 a. m. CST. Inicie el chat en vivo haciendo clic en la burbuja LIVE CHAT.

Facebook y Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho

Crédito:
Idaho Coalition Against Sexual and Domestic Violence
Love is Respect
Live Well San Diego
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Click here to download this in PDF format / Clic aqui para descargar esto en formato PDF

January 2022's Youth Corner

Idaho Parents Unlimited
Engage + Educate + Bridge + Lead
Jan. 2022 Vol. 1

Youth Corner
How can you advocate for yourself?

The goal with self-advocacy is to have as much say in making decisions that affect your life. What do you want to do after high school? College? What would you like to be when you “grow up”? Self-advocating is important for everyone but, especially if you have a disability. You need to know your rights when it comes to school and work. Do you know what accommodations you need? Do you know how to ask for them?

Steps for self-advocating:

Who are you? What do you need? What do you want? What areas are you good at advocating for yourself in? What area could you work on?
What are your rights? Do you require accommodations? Knowing what your rights are and how to ask for what you need is important.
This step is important. Now that you know who you are, what you need, and what your rights are it is time to “speak up”. Share your thoughts, ask questions, and stand up for yourself.
You’re not alone, team up with others! Strength comes in numbers, find others who want to accomplish the same goals.

This is a matter of balance. It isn’t easy but you have rights, and you deserve to have the life you desire. Be assertive, but respectful, speak to what you want and need. Practice makes perfect, it takes time to accomplish your goals but you will get there!

Who is IPUL? We are the families we serve!

Here at IPUL we are all parents of children with disabilities and special health care needs. We are the Statewide Parent Training and Information Center and Family to Family Health Information Center. We provide resources, support, workshops, as well as one to one assistance to families who have children with disabilities at no cost to families. For our youth specifically we have IPUL Arts and “Work of Art”. Our arts program provides arts education and instruction to children and youth in classrooms and community centers taught by teaching artists. Our partnership with the Idaho Division of Vocational Rehabilitation called "Work of Art" helps youth with disabilities develop important skills for employment.

Facebook and Instagram /IdahoParentsUnlimited
Twitter /IPULIdaho
Idaho Parents Unlimited
ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.
208.342.5884

Click here to download this in PDF format / Clic aqui para descargar esto en formato PDF

Rincón Juvenil

Idaho Parents Unlimited

Engage + Educate + Bridge + Lead

Ene. 2022 | Vol. 1

Rincón Juvenil

¿Cómo puedes abogar por ti mismo?

El objetivo de la autodefensa es tener la mayor cantidad de voz en la toma de decisiones que afectan su vida. ¿Qué quieres hacer después de la secundaria? ¿Universidad? ¿Qué te gustaría ser cuando seas “mayor”? La autodefensa es importante para todos, pero especialmente si tiene una discapacidad. Necesita conocer sus derechos cuando se trata de la escuela y el trabajo. ¿Sabe qué adaptaciones necesita? ¿Sabes cómo pedirlos?

Pasos para la autodefensa:

¿Quién eres tú? ¿Que necesitas? ¿Qué quieres? ¿En qué áreas eres bueno defendiéndote a ti mismo? ¿En qué área podrías trabajar?
¿Cuáles son tus derechos? ¿Necesita alojamiento? Es importante saber cuáles son sus derechos y cómo pedir lo que necesita.
Este paso es importante. Ahora que sabe quién es, qué necesita y cuáles son sus derechos, es hora de “hablar”. Comparte tus pensamientos, haz preguntas y defiéndete.
¡No estás solo, forma equipo con otros! La fuerza viene en los números, encuentre a otros que quieran lograr las mismas metas.

Esta es una cuestión de equilibrio. No es fácil, pero tienes derechos y mereces tener la vida que deseas. Sé asertivo, pero respetuoso, habla de lo que quieres y necesitas. La práctica hace al maestro, se necesita tiempo para lograr tus objetivos, ¡pero lo lograrás!

¿Quien es IPUL?

¡Somos las familias a las que servimos!

Aquí en IPUL todos somos padres de niños con discapacidades y necesidades especiales de salud. Somos el Centro Estatal de Capacitación e Información para Padres y el Centro de Información de Salud de Familia a Familia. Brindamos recursos, apoyo, talleres, así como asistencia personalizada a familias que tienen niños con discapacidades sin costo alguno para las familias. Para nuestra juventud específicamente tenemos Artes IPUL y “Obra de Arte”. Nuestro programa de artes brinda educación e instrucción artística a niños y jóvenes en aulas y centros comunitarios impartidos por artistas docentes. Nuestra asociación con la División de Rehabilitación Vocacional de Idaho llamada "Obra de Arte" ayuda a los jóvenes con discapacidades a desarrollar habilidades importantes para el empleo.

Facebook y Instagram /IdahoParentsUnlimited

Twitter /IPULIdaho

Idaho Parents Unlimited

ipulidaho.org This email address is being protected from spambots. You need JavaScript enabled to view it.

208.342.5884

Click here to download this in PDF format / Clic aqui para descargar esto en formato PDF