Health
Genetics Resources and Getting a Diagnosis
Where to find genetics services in and near Idaho, how they tend to be paid for, and what to do when a diagnosis is still an open question.
Idaho Parents Unlimited has an internal tool that we use with families to help you navigate the complicated systems of genetic resources – including trying to get a diagnosis for your child, accessing genetics services, understanding how genetics services may be paid for, and resources for specific diagnoses.
Please contact us for more information. Furthermore, below are some links that may be helpful.
- St. Luke’s Clinic – Genetics and Metabolic
- Idaho Department of Health and Welfare Children’s Special Health Program
- Western States Genetic Services Collaborative
- Primary Children’s Hospital Genetics
- Providence Medical Group Genetics and Genomics
- Doernbecher Children’s Hospital Genetics and Birth Defects
NORD’s Rare Disease Database provides brief introductions for patients and their families to more than 1,200 rare diseases.
Not sure where to start?
You don’t need to know the right questions. Tell us what’s happening and we’ll help you work out what comes next — there’s no cost, and no wrong questions.