Genetics Resources / Diagnosis Information

Genetics Resources

Idaho Parents Unlimited has an internal tool that we use with families to help you navigate the complicated systems of genetic resources – including trying to get a diagnosis for your child, accessing genetics services, understanding how genetics services may be paid for, and resources for specific diagnoses.  

Please feel free to contact us for more information.  Furthermore, below are some links that may be helpful.  

Nord Logo a blue circle of dumbell shapes with one in orange the word nord to the right of this
National Organization for Rare Disorders: Rare Disease Information Database
NORD’s Rare Disease Database provides brief introductions for patients and their families to more than 1,200 rare diseases.