COVID-19 Information 


This will act as a central location to find any information we are posting about the ongoing COVID-19 outbreak, starting with IPUL's current status. 

 

 

 

COVID-19 Letter for Parents from the Idaho Department of Health and Welfare, Children's DD Program

March 16, 2020
Dear Parent:

As you have heard, the novel coronavirus (COVID-19) has now been diagnosed in individuals in Idaho. As we learn more about this virus, we want to assure you that The Department is taking steps to prevent the spread of this virus while considering your child’s well-being.

To encourage social distancing during this time, the Children’s Developmental Disabilities Program is making the following accommodations:

  • All Family Centered Planning meetings will be conducted over the phone through March 31, 2020 or until further notice to help reduce the threat of continuing  spread of the virus. If you feel you need to meet face to face with your Case Manager please call them to discuss the need.
  • Your child’s Case Manager will be available by phone to answer any questions regarding access and services. Local offices will remain open during this time.
  • All Family Directed Guide meetings will be suspended until further notice.
  • If you have questions about the virus, it is important to obtain information from a trusted source such as https://coronavirus.idaho.gov/ or the Centers for Disease Control and Prevention (CDC). Please consider obtaining information on how to prepare your household for possible exposure to the virus.

Here are a few steps you can immediately begin taking to help prevent the spread of this virus. For prevention measures, the CDC recommends that everyone follow the normal precautions for avoiding the flu and other respiratory diseases:

  • Avoid close contact with people who are sick.
  • Avoid touching your eyes, nose, and mouth.
  • Stay home when you are sick.
  • Cover your cough or sneeze with a tissue, then throw the tissue in the trash.
  • Clean and disinfect frequently touched objects and surfaces using a regular household cleaning spray or wipe.
  • Wash your hands often with soap and water for at least 20 seconds, especially after being in public; going to the bathroom, before eating after blowing your nose, coughing, or sneezing.
  • If soap and water are not readily available, use an alcohol-based hand sanitizer with at least
  • 60% alcohol. Always wash hands with soap and water if hands are visibly dirty.

Sincerely,


Susan Stumph
Children’s DD Program
Family and Community Services

Accordion

Group Name:  Autism Friends of Bingham
Serves:  Bingham, Idaho and surrounding areas. 
For:   Serving people with an immediate family connection with persons with Autism/SPD/Developmental Delays
Offering:

We offer:
A local Parent Support Group with Certified Child Care 
A Tween/Teen Boardgame social skills group 
Mom’s Coffee Talk
&
Family Fun Events (usually small fee or free) for entire families!

All of this once a month!!

Meets at:  Parent Support
Dawn Enterprises
280 Cedar Street, Blackfoot, ID 83221

Second Thursday of every month at 6pm
 
Facebook Page:  Autism Friends of Bingham
Contact:  Phone: 208-680-0235

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Signed: 
Angela Lindig

Angela shares her story on why this is important to her: 
It's now been a full month since learning of our diagnosis, and I'm still in a bit of shock and probably will be for quite some time.
Our daughter, Amber Hope who will be 24-years-old this month has results - an actual genetic confirmation for her neurodevelopmental disability. It's rare enough (for now) that it doesn't have a "syndrome" name attached to it and there are approximately 62 individuals worldwide with the diagnosis.
The number of tests that Amber had early on is staggering. As parents, we were told by her neurologist at 5 mos that he had never seen anything quite like it in his ten years of practice. We felt incredibly isolated not knowing how she would develop or how to help her. We did traditional interventions over the years and that definitely helped her to make progress in her development; however, we have always lived with the unknown. Also, as scientists and researchers from around the globe have begun to make tremendous advances in therapeutic interventions and even cures for some rare diseases, we knew there could be more that we could do to help her maintain her health, improve her functional skills, and increase her independence.
Amber was finally seen in September of this year to do some new health concerns and new genetic testing was done. Finally, the wait is over. She has a diagnosis of a single gene mutation on the X chromosome HNRNPH2 gene.
Even with such a small group of people, we are already learning about some of the additional health concerns that others have experienced that we can work to prevent or ameliorate. The group is small now but with Whole Genome Sequencing, we will identify many more who deserve to have this information sooner than later. Just connecting with other families is worth its weight in gold. Finally, we have researchers already working in the lab to understand the disorder and search for therapeutic interventions including gene therapy.
As a side note, we also learned that the condition is de novo which means it's not hereditary in our case.

We urge you to support this Act so that no family has to wait to obtain a correct diagnosis for their child. Angela and Darin Lindig

More about our daughter's diagnosis can be found at https://www.facebook.com/yellowbrickroadproject/

Sarah Mann   
Ben Stallings
Jennifer Johnson
Anna Quon
Erin Seaman